Search
Close this search box.
The logo for Emerge Australia, centered around the keyword ME/CFS.
Search
Close this search box.
Search
Close this search box.
Search
Close this search box.

Our News Articles

What will it take for Australia to get new clinical guidelines for ME/CFS?

Update Australia’s outdated clinical guidelines to reflect internationally agreed safe and best practice care for people with ME/CFS

It is vitally important that up-to-date national clinical guidelines are developed that reflect the current knowledge base for ME/CFS and have the capacity to incorporate emerging evidence as and when it is published.  ‘Living’ guidelines ensure that people with ME/CFS can benefit as soon as possible from advances in diagnosis and treatment ​and can be efficiently updated. It

Read More »
A yellow liquid emanating from a microscope.

Knowledge from ME/CFS research and the emerging field of Long COVID must be shared and integrated

There are many highly qualified researchers and centres that need support to conduct these correlation studies. For example, Emerge Australia, in partnership with La Trobe University, manages Australia’s only ME/CFS Biobank. This partnership aims to expand Australia’s ME/CFS Biobank to include Long COVID samples, allowing researchers to compare patient cohorts. This will be a unique

Read More »
What will it take for Australia to get new clinical guidelines for ME/CFS?

Our GPs need to know what to do: We have the plan, we need the funds

Educate doctors to diagnose ME/CFS and Long COVID and provide evidence-based support to people with these conditions Emerge Australia has written a 5 years plan for GP Education about ME/CFS, Long COVID and post-viral diseases, accessible to all of Australia’s GPs. Research estimates 90% of people with ME/CFS have not been diagnosed and GPs often

Read More »
A woman resting on a white pillow.

Australians with ME/CFS need an Optimal Care Referral Pathway

Currently, people with ME/CFS and post-viral diseases do not routinely receive appropriate, coordinated care. Furthermore, they face barriers accessing evidence-based information and vital allied health support, all of which can inhibit symptom management and recovery. It is critical that ME/CFS and Long COVID patients work in partnership with their healthcare team to understand and manage their

Read More »
A woman with mecfs wearing a headset in front of a computer.

Changes to the Support and Services programs

Patient Pathways telehealth pilot program Our Patient Pathways telehealth pilot program will be completed on June 30, 2022. Emerge Australia would like to thank the Centre for Community-Driven Research (CC-DR) for including us in this program. Over the next couple of months, we will start to create a new Telehealth Nurse referral process and provide an additional service to

Read More »
National Volunteer Week 2022

National Volunteer Week 2022

16-22 May 2022 Better together  Emerge Australia was created by volunteers more than 40 years ago. Today, volunteers continue to devote considerable time and expertise to Emerge Australia to ensure that we can continue to provide the high-quality services and programs for people living with ME/CFS. This National Volunteer Week we hope you will join

Read More »
A stethoscope on top of a bed used for patients with mecfs.

Our strategy to educate GPs about ME/CFS

Update: Feedback from GPCE Sydney shows important education outcomes among GPs  Verbal feedback from Richard’s presentation about, Long COVID and ME/CFS: Diagnosis, treatment and management options, in Sydney in late May was overwhelmingly positive. Formal, written feedback, provided to us last week by the organisers of the event, is equally as impressive. 80% of attendees reported that Dr

Read More »
A man with ME/CFS is resting on a couch at night.

ABC Radio: Do we take Chronic Fatigue Syndrome seriously?

Release date: 27 April 2022 On ABC’s The Conversation Hour, Richelle Hunt and Jane McNaughton speak with Dr Richard Schloeffel, Emerge Australia’s Medical Director, about how ME/CFS is misunderstood in Australia and if those living with ME/CFS can help those being diagnosed with Long COVID. Listen to the interview Published: 6th May, 2022 Share this

Read More »
What will it take for Australia to get new clinical guidelines for ME/CFS?

New Australian Clinical Guidelines for ME/CFS urgently needed

Media Release  Existing, 20-year-old Clinical Guides Need Review Enable this content? This content is served by a third party, player.vimeo.com.If enabled, player.vimeo.com may collect information about your activity.Manage preferences to always allow this content. Accept and EnableManage Preferences Read the report – State of the Nation: Because people with ME/CFS matter Emerge Australia has called

Read More »
What will it take for Australia to get new clinical guidelines for ME/CFS?

Australia’s Post-viral Disease Tsunami Threat

Media Release22 April 2022 Political Parties Warned on Major Hit On Health Budgets Enable this content? This content is served by a third party, player.vimeo.com.If enabled, player.vimeo.com may collect information about your activity.Manage preferences to always allow this content. Accept and EnableManage Preferences Read the report: State of the Nation: Because people with ME/CFS matter

Read More »
Two researchers in lab coats examining microscopes while studying mecfs.

April 2022 International Research and Advocacy Roundup

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.  Research The UK ME/CFS Priority Setting Partnership (PSP), facilitated by the James Lind Alliance (JLA), is coming to a conclusion. The aim of the PSP is to provide

Read More »
A large group of individuals with mecfs sitting in a conference room.

Merri Health Physiotherapists and Exercise Physiologists learn about ME/CFS

As part of Emerge Australia’s ongoing specialised education sessions for Allied Health professionals our Nurse Educator, Kate Herbert, presented an education session on Monday March 4th, about the basics of ME/CFS. The group of 11 physiotherapists and exercise physiologists at Merri Health, based in the northern suburbs of Melbourne were particularly interested to know about

Read More »
A woman with mecfs laying on a white bed.

ABC NewsRadio interview: Similarities between ME/CFS and Long COVID

Release date: 16 March 2022 The impact of the long term effects of COVID-19 are becoming better understood. It’s estimated that up to 30 per cent of people who get infected with COVID show symptoms months later. ABC NewsRadio’s Cameron Green spoke to Dr Richard Schloeffel, Medical Director of Emerge Australia. He says there are

Read More »
Medical Director Appointed

Lack of research and funding for myalgic encephalomyelitis/chronic fatigue syndrome

Media Release: 16 March 2022 One of Australia’s leading medical specialists on complex and chronic disorders today warned the lack of research and treatment information for the medical profession on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can lead to inappropriate diagnosis and treatment of patients. Dr Richard Schloeffel OAM, the Medical Director of Emerge Australia, who

Read More »
A woman with mecfs resting on a couch.

Women Hit by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Media Release  Emerge Australia today revealed that approximately 75% of an estimated 250,000 Australians living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are women. Speaking on the eve of International Women’s Day, Anne Wilson, CEO of Emerge Australia said, myalgic encephalomyelitis (ME/CFS) is a complex and disabling neurological disease that affects many parts of the body, including

Read More »
Two researchers in lab coats examining microscopes while studying mecfs.

Medical & Scientific Advisory Committee appointed

Emerge Australia is pleased to announce the appointment of our new Medical & Scientific Advisory Committee (MSAC).  The MSAC combines the knowledge of ME/CFS clinicians and researchers, as well as Emerge Australia staff, to pool the collective knowledge to set in motion objectives which will improve the outcomes for Australians impacted by ME/CFS.  Members of MSAC

Read More »
Medical Director Appointed

Medical Director Appointed

Recently the Board of Emerge Australia unanimously voted to appoint Dr. Richard Schloeffel OAM to the position of Medical Director.  This is a significant appointment that will result in Dr. Schloeffel having oversight of direction regarding clinical programs and our work on ME/CFS Clinical Guidelines among other areas. Dr. Schloeffel will provide a link between

Read More »
NICE Guidelines released

NICE Guidelines released

After an initial delay, it was announced on October 29th, that the new National Institute of Health and Care Excellence (NICE) guideline (UK) for ME/CFS have finally been published.  The new guidelines represent a significant shift in the medical treatment of ME/CFS in the UK. In particular acknowledging that exercise programs can make ME/CFS worse and that cognitive behavioural therapy (CBT) is not a curative

Read More »
An elderly man with ME/CFS is being cared for by a caregiver.

National Carers Week

During National Carers Week, Emerge Australia would like to acknowledge and thank all those who extend care and support to the 250,000 Australians impacted by ME/CFS. Nationally, 2.65 million Australians provide care for others, making you part of a large community. The theme for this year’s celebration is Millions of Reasons to Care. Most people who provide care don’t see themselves as carers, they instead see themselves as parents, partners,

Read More »
Echuca Regional Health learns about ME/CFS

Echuca Regional Health learns about ME/CFS

7 October 2021 An important part of improving outcomes for people living with ME/CFS is educating healthcare professionals about the condition and what they can to do help. Last week, our Nurse Educator Kate Herbert delivered a “Back to Basics” presentation to nurses and social workers at Echuca Regional Health for their recent professional development day.   Only two of the participants who responded to the pre-presentation survey had received any formal training about ME/CFS. So, Kate covered the basics including both outdated and

Read More »

Online Peer Support Groups for Carers of people living with ME/CFS

Did you know that carers make up nearly 11% of Australia’s population? Meaning that there are approximately 2.65 million carers across Australia. Carers and family members of those living with ME/CFS can benefit from joining our online peer support groups, to connect with others who undertake caring roles for their loved ones.   As part of

Read More »
Statement on the NICE Guidelines Delay

Statement on the NICE Guidelines Delay

Emerge Australia is very disappointed to learn that the UK’s National Institute of Health and Care Excellence (NICE) has announced that it has paused the publication of its new ME/CFS clinical guidelines, which had been due to be released on August 18. This is a devastating development for ME/CFS patients around the world, especially those in the UK who have waited years for these new guidelines.   The draft of the new guidelines, released late last

Read More »
A researcher in a lab coat documenting mecfs findings in a notebook.

CHROMIC Deakin University ME/CFS Research Study

Funded by the National Health and Medical Research Council Deakin University and Barwon Health, the CHROMIC study aims to improve the understanding of the disorder as well as to look for new treatments for ME/CFS. To take part in the study, only one appointment is required of the participants. This appointment includes the collection of

Read More »
ANCHOR Study

ANCHOR Study

Recruitment has commenced for the ANCHOR Study. This landmark ME/CFS research is funded by the Medical Research Future Fund to investigate the quality of life, social, educational and economic impacts of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on people living with the condition and their carers. This project is a collaboration of researchers from the University

Read More »
CDC review of ME/CFS Diagnosis & Treatments

CDC review of ME/CFS Diagnosis & Treatments

In May, the US Centers for Disease Control and Prevention (CDC) released a draft of its evidence review on the diagnosis and treatment of ME/CFS for public comment. This review has been in development since 2018, and was to be the CDC’s first step in the development of new US clinical guidelines for ME/CFS. Emerge

Read More »

Search our site

Search

Newsletter

Join our Newsletter

Giving a voice to the unseen and unheard.
Sign up to our newsletter today.

Scroll to Top