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Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.

Published: 1 November 2023 Emerge Australia, the national patient organisation for people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and long COVID, says a recommendation to reduce access to telehealth services further disadvantages people already struggling to access health care. The Medicare Benefits Schedule Review Advisory Committee (MRAC) has supported the removal of initial non-GP

Published: 19 October 2023 An Australian registry of people living with debilitating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) will be expanded to include people with long COVID. AusME Registry and Biobank, a collaboration between national patient advocacy organisation Emerge Australia and universities, is recruiting people with post-infection diseases to join research efforts to find a cure

Published: October 12 2023 AusME Registry and Biobank expands research into ME/CFS to include long COVID Call for participants to help unlock the mystery of invisible illness A registry of people living with debilitating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) will be expanded to include people with long COVID. AusME Registry and Biobank, a collaboration between

Published: 18 October 2023 Emerge Australia, a national advocacy group for myalgic encephalomyelitis/chronic fatigue syndrome, is partnering with universities across the country to expand its research to long COVID as well as ME/CFS by inviting people over 12 years old with post-infection diseases to enrol on the AusME registry “People can join the AusME registry

Hello to all our supporters and readers of the Emerge Australia newsletter! At the time of writing this introduction to our newsletter I am dumbfounded as to how quickly the end of the year has come around.  Do you know it is only 83 days to Christmas?  That is so scary given the work to

The final report from the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability was released in late September 2023. The Royal Commission ran for four years, held 32 public hearings with 837 witnesses and private hearings with 1785 witnesses, and received 7922 submissions. The final report is in 12 volumes and

Published: 5 October 2023 New research from RMIT University in Melbourne says Australia is lagging behind in how it deals with the impact of long COVID. Research suggests up to 40 per cent of people who contract COVID-19 experience lingering symptoms like fatigue, shortness of breath and brain fog. Emerge Australia CEO Anne Wilson spoke

Published: 9 September 2023 In August Emerge Australia CEO Anne Wilson spoke with ABC Journalist Evan Young for his article detailing how ME/CFS is nothing like the tiredness that many people experience in their daily lives. Ms Wilson spoke about the lack of visibility and often understanding of people living with ME/CFS. Despite the debilitation,

Hello to all our supporters and readers of the Emerge Australia newsletter, It’s great to have you with us and to be able to share with you so much that has been happening over the past 6 weeks. As you all know our team has worked tirelessly to take account of the very helpful feedback

It gives me great pleasure to introduce Emerge Australia’s new website and refreshed brand to you. As you are all aware, so many supporters and community members have generously contributed throughout this journey and we thank you so very much for your engagement and support. As I shared back in March we have needed to

End of Financial Year Telehealth Appeal Emerge Australia wishes to say a heartfelt thank you to all who were able to donate to help us reach our goal of $58,000. Because of your generous help and support, we reached that target (and a little bit more), and look forward to being able to provide the

I was delighted to present at the launch of our new ME/CFS Parliamentary Friends Group in Canberra on 13 June.  It was a very well attended event at which MPs, their advisors and the ME/CFS community were well represented.  It was particularly important for me as I hadn’t met many of the ME/CFS community representatives or stakeholders

Published: July 07 2023 Emerge Australia CEO, Anne Wilson was on hand to speak to Ed Krutcsh of Pro Bono Australia. Anne is an experienced Chief Executive Officer and Managing Director with a diverse track record of restructuring, repositioning and growing organisations to meet stakeholder needs while attracting investment for financial sustainability and growth. She

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Emerge Australia along with members of the ME/CFS community and key stakeholders met in Canberra on Tuesday June 13th for the much awaited launch of the Parliamentary Friends of ME/CFS Group. The cross-party group, co-chaired by Senator Jordon Steele-John and Maria Vamvakinou MP, will provide a non-partisan forum for MPs to speak with advocates, researchers

Emerge Australia returned to Sydney GPCE this year, 19-21st May, to continue educating GPs about ME/CFS and long COVID – especially when PEM is a feature. Emerge Australia’s Medical Director, Dr Richard Schoeffel, delivered an Advanced Education course twice during the conference, educating 180 GPs about ME/CFS and long COVID.   Demand for the topic was

Anne Wilson, CEO of Emerge Australia visited the Victorian Artists Society to announce VAS Artist Kristan Oud as an Ambassador for Emerge Australia. Emerge Australia – is a national patient organisation that gives hope to over 500,000 people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and long COVID through patient support and information, clinical education, advocacy and biomedical research.  Kristan Oud said “With no

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months. Research  The UK DecodeME genome-wide association study is underway and has reported on progress made so far. By the end of 2022, 23,000 participants had registered for the

In 2022, Emerge Australia’s Medical Director, Dr Richard Schloeffel, OAM presented the keynote address at four General Practitioner Conference and Exhibitions (GPCE) with overwhelmingly positive feedback. At these conferences, we demystified the disease by presenting the latest research and providing practical, applicable management options to create a better experience for the patient.    Another theme from

Emerge Australia has announced champion of women Tracey Spicer AM as its new ambassador. The respected journalist and campaigner, with a career spanning radio, television, and newspapers, is throwing her weight behind Emerge Australia, the national patient organisation that represents, supports and advocates for people with post-viral infections including Myalgic Encephalomyelitis* and Chronic Fatigue Syndrome (ME/CFS) and increasingly long COVID. Research is finding overlaps

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.  Research The US Centers for Disease control published its long-awaited evidence review of ME/CFS diagnosis and management. The report followed an extensive public consultation process, with submissions from

Published: 19 December 2022 Emerge Australia’s CEO, Anne Wilson, spoke with the ABC’s Fiona Blackwood about how greater access to government supports like Medicare, NDIS and the disability pension were needed for patients living with invisible illnesses like ME/CFS and long COVID “Because those diseases are classified as diseases rather than a disability, it is very

Release Date: 1st December 2022 Eligibility for oral COVID-19 treatments The Pharmaceutical Benefits Advisory Committee recommended changes to the Pharmaceutical Benefits Scheme (PBS) eligibility criteria of oral treatments for COVID-19. This will take effect from 1 November 2022. Antiviral treatments taken as capsules or tablets may help stop COVID-19 infection from becoming severe. Courses of

Publish date 27 October 2022 The ABC’s Sophie Scott and Stephanie Dalzell recently spoke with Emerge Australia’s CEO, Anne Wilson, as part of their story on the Federal Governments underfunding of long COVID in Australia. Health authorities around the world are spending billions on tackling long COVID, with innovative research projects for new treatments and

Release Date: 27 October 2022 Emerge Australia’s CEO Anne Wilson speaks with Ros Childs on the ABC expressing disappointment at the latest federal budget, handed down on Tuesday, providing no funding for the sufferers of ME/CFS and long COVID. Ms Wilson details how Emerge Australia may be forced to close essential patient services, including the

Media Release: 12 October 2022 How Would You Cope facing the daily battle of Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), for which there is no known cure? Click the Links below to listen to Emma and Caitlin’s stories. Emma’s Story ‘Its a Women’s Health Issue’ Click the Link Below A Women’s Health Issue | Emerge Australia

Publish date July 27 2022 One of our amazing volunteers, Jenny, Dr Richard Schloeffel and CEO Anne Wilson were recently interviewed for the RMIT City Journal by Rebecca Kazmierczak. Jenny who was once an active swimmer, runner and bush walker, bravely explains how her life has deteriorated into a “lifelong lockdown”, where she is bedridden most days

One cold evening in late July, Emerge Australia’s Nurse Educator, Kate Herbert, presented to the Australian Physiotherapy Association pain special interest group about ME/CFS. With over 100 participants, including attendees also from other special interest groups, this was the most well attended presentation Kate has delivered to date.   Kate’s presentation drew on research and practice.

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.  Research The US National Institute of Health’s (NIH) Community Advisory Committee for ME/CFS has developed a quick reference guide for researchers designing clinical trials with ME/CFS patients. The