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Our Research Digests

Research Digest | Issue 103

Welcome to the 103rd edition of Emerge Australia’s Research Digest. The first edition of the year features studies that illuminate various aspects of research related to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and post-acute COVID-19 syndrome, as well as insights and experiences from those living with ME/CFS regarding healthcare services. Contributing Digesters: Sarah, Solène, Shan and

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Research Digest | Issue 102

Welcome to the 102nd edition of the Research Digest. This year’s final edition delves into research identifying potential biomarkers for Long COVID and those meeting ME/CFS consensus criteria. We also highlight an Australian study assisted by Emerge Australia, showcasing the significant contribution of the ME/CFS patient/carer advisory group in determining the economic burden of ME/CFS

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Research Digest | Issue 101

Welcome to the 101st edition of the Research Digest. This month’s edition features articles that explore exercise pathophysiology through invasive cardiopulmonary exercise testing, the role of orthostatic hemodynamic changes in cognitive impairment in Long COVID and ME/CFS, and clinical guidance for the diagnosis and management of ME/CFS. You can also join our community and choose to

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Research Digest | Issue 100

Welcome to the 100th edition of Emerge Australia’s Research Digest! To commemorate the milestone of our 100th issue, we’re shining a light on Emerge Australia’s own contribution to ME/CFS (and now Long COVID) research, with the launch of AusME, the new Australian ME/CFS and Long COVID Registry and Biobank. This months Contributor and Digest Editor:

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Research Digest | Issue 99

In this 99th edition of the Research Digest, we highlight the discovery of WASF3, a key protein linked to exercise intolerance in ME/CFS. We also explore the use of health survey tools to better convey the burden of ME/CFS in Australia. Additionally, we delve into the analysis of plasma samples, identifying promising metabolites for diagnosing

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Research Digest | Issue 98

Welcome to the 98th edition of the Research Digest. This edition features articles that contribute to our understanding of ME/CFS and Long COVID. Alongside a Swiss report detailing the experiences of individuals with ME/CFS, the digest presents research on the enduring cognitive effects of COVID-19 and a study demonstrating the advantages of adhering to pacing

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Research Digest 27/7/23

Welcome to the 97th edition of the Research Digest. July’s edition features ME/CFS studies that assess the potential diagnostic markers for ME/CFS and an article suggesting the immune and metabolic responses to intestinal cell damage are suppressed, in those living with ME/CFS. July’s edition also highlights Emerge Australia’s CEO Anne Wilson, and her focus on empowering change, for invisible illnesses.

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Research Digest 29/6/23

Welcome to the 96th edition of the Research Digest. This month’s edition presents study outcomes demonstrating the presence of POTS in ME/CFS and further evidence that implicates the dysregulation of cytokine signalling in ME/CFS. This month’s Research Digest also highlights Emerge Australia’s efforts alongside members of the ME/CFS community and key stakeholders, to launch the Parliamentary Friends Group for ME/CFS, a meeting that took place at Parliament House on June 13th, 2023.

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Research Digest 25/5/23

Welcome to the 95th edition of the Research Digest. This edition features a study looking at transcriptomic changes in those with ME/CFS following an exercise challenge and examines ME/CFS symptom differences in Black and White individuals. This edition also highlights the impact of Long COVID in Australia and the Conversation hour discusses Long COVID, in the context of how it’s changing the way we respond to ME/CFS.

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Research Digest 27/4/23

Welcome to the 94th edition of the Research Digest. This month’s edition summarises research studies investigating the impact of exercise on post-exertional malaise, offering invaluable insights into exercise pathophysiology for both ME/CFS and Long COVID. This month’s edition also highlights the long-awaited report from the parliamentary inquiry into Long COVID, which includes a recommendation for more research and patient support for those living with ME/CFS.

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Research Digest 30/3/23

Welcome to the 93rd edition of the Research Digest. This month’s edition summarises research that investigates factors that influence the prognosis of ME/CFS and demonstrates that high muscle sodium content, maybe a contributing factor to the pathophysiology of ME/CFS. A review is also highlighted that conveys what is presently known about Long COVID and finally, a local study sheds light on brain structure changes that are common to Long COVID and ME/CFS.

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Research Digest 23/2/23

Welcome to the 92nd edition of the Research Digest. This month recapitulates research studies that extend our understanding of ME/CFS and Long COVID. The effect of exercise on the content of extracellular vesicles is investigated for ME/CFS and for Long COVID symptoms. This edition also highlights comments made by Professor Brendan Crabb, CEO of the Burnet Institute encouraging the government to ‘change the narrative’ to prevent the infection of COVID-19 and limit the impact of Long COVID.

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Research Digest 22/12/22

Welcome to the 91st edition of the Research Digest.  In our final edition for the year, a study evaluating aspects of the current IOM criteria is presented, as well as national and international research findings concerning Long Covid.   The final edition also puts a spotlight on the disbelief that people living with invisible disabilities like ME/CFS and Long Covid endure, and highlights Anne Wilson’s call for the government to better recognise those living with invisible disabilities.

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Research Digest 01/12/22

Welcome to the 90th edition of the Research Digest. This month’s edition features ME/CFS studies investigating microclotting and antibody targeting of gut bacteria. Also presented, is the study of serum samples from post-covid syndrome and -/+ME/CFS patients, to further study endothelial dysfunction and the role of angiogenesis in both study groups. And finally, the recent ABC news article featuring Chris Armstrong and Anne Wilson is highlighted.

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Research Digest 27/10/22

Welcome to the 89th edition of the Research Digest. This edition features a study looking more closely at blood cells to investigate mitochondrial abnormalities and immunological changes in ME/CFS. Furthermore, the effect of whole-body cryotherapy and activity monitoring in patients living with ME/CFS is presented. A link to Anne Wilson’s (Emerge Australia’s CEO) interview, responding to the lack of funding for ME/CFS and Long COVID services in the federal budget is also highlighted.

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Research Digest 29/09/22

Welcome to the 88th edition of the Research Digest. This edition features a study that aimed to determine the value of a simple, objective office-based test in the evaluation of OI and brain fog and large genetic association study that sought to identify chromosomal regions that may be linked to ME/CFS.

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Research Digest 25/08/22

Welcome to the 87th edition of the Research Digest. This month’s edition highlights emerging evidence of endothelial dysfunction, to further demonstrate the striking similarities of Long Covid to ME/CFS. The metabolism of tryptophan and the role of its metabolites are also presented and postulated to influence symptoms of ME/CFS, as well as suggested mechanisms that may be responsible for the neuroinflammation observed in both ME/CFS and Long Covid.

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Research Digest 28/07/22

Welcome to the 86th edition of the Research Digest. This edition reviews research articles looking further into infectious mononucleosis and its links with ME/CFS and the impact of ME/CFS, on the quality of life for patients and their partners.  The digest also presents a recent ME/CFS brain imaging study that may prove useful diagnostically in the future and highlights the 2GB radio interview, featuring Emerge Australia’s CEO Anne Wilson, discussing the impact of changes to Telehealth.

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Research Digest 30/06/22

Welcome to the 85th edition of Emerge Australia’s Research Digest. As a special edition, this month’s digest recapitulates Emerge Australia’s ME/CFS Awareness Week Research Panel webinar, providing insight into how our local ME/CFS community is contributing to ME/CFS research in Australia; via their contributions to the ME/CFS Biobank and You+ME Registry Australia.

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Research Digest 26/05/22

Welcome to the Research Digest’s 84th edition. This month we recap research studies of ME/CFS endothelial cell dysfunction and how metabolomics may provide insight into ME/CFS, pre-and post-exercise. Also presented, is advice for the treatment of Long Covid patients, given the injustices experienced by those with ME/CFS and a very honest account of what lengths a person living with ME/CFS will go to, in the absence of ME/CFS treatments; accenting the dire need for vital ME/CFS research funding.

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Research Digest 28/04/22

Welcome to the 83rd edition of the Research Digest. This month’s edition features ME/CFS studies focused on orthostatic intolerance, the effects of Naltrexone on ME/CFS NK cells, as well as a promising ME/CFS eye movement diagnostic tool. This edition also highlights Emerge Australia’s radio interviews featuring Anne Wilson, our CEO campaigning for an update to the ME/CFS guidelines and Richard Schloeffel (our Medical Director) calling out the disbelief of ME/CFS as “Medical Abuse Syndrome”.

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Research Digest 24/03/22

Welcome to the 82nd edition of the Research Digest. This month’s edition features studies investigating blood flow abnormalities that may contribute to the pathogenesis of ME/CFS and how lessons learnt from heat stroke may be useful to better understand ME/CFS. Further analysis of Long Covid and its overlap with ME/CFS symptomology is also presented with future research areas postulated. And last but not least, we present highlights from Anne Wilson’s recent radio interview on ABC Life Matters,

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Research Digest 24/02/22

Welcome to the 81st edition of the Research Digest. This edition reviews research articles investigating the potential of the cortical autonomic network, to act as a therapeutic target for ME/CFS symptom management, the involvement of C1q in ME/CFS pathology and more evidence demonstrating a linkage between ME/CFS and Long Covid. The highlights from a radio interview featuring Emerge Australia’s CEO Anne Wilson on 2GB, are also presented.

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Research Digest 23/12/21

Welcome to the 80th edition of the Research Digest. This edition summarises research papers trialling CT38s to investigate the involvement of the corticotropin-releasing factor system in ME/CFS and an Australian study observing the impact of life stressors, on those living with ME/CFS. The 80th and final edition of the research digest is concluded for 2021, with Emerge Australia’s full-page advertisement in the AFR, providing ME/CFS a voice in the national Long COVID conversation.

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Research Digest 26/11/21

Welcome to the 79th edition of the Research Digest. This month’s edition of the research digest presents an article distinguishing ME/CFS patients based upon herpesviruses serology and also a comprehensive examination of severely ill ME/CFS patients.  The 79th edition also highlights a review paper discussing redox imbalance and how this contributes to biological abnormalities that have long been known for ME/CFS, but now are also being observed in patients with acute and Long COVID.

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Research Digest 29/10/21

Welcome to the 78th edition of the Research Digest. This edition of the research digest features articles investigating ACE2 gene expression in ME/CFS blood cells and findings from a UK audit of doctors knowledge and experience with ME/CFS.  This edition also highlights recent reports in the media, articulating links between long-COVID and ME/CFS.

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Research Digest 24/09/21

Welcome to the 77th edition of the Research Digest. This edition of the digest presents articles exploring the feasibility of N-of-1 observational design for the study of ME/CFS, and attribution theory to investigate the relationship between higher perceived stigma and lower functional status found in ME/CFS.

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Research Digest 10/09/21

Welcome to the 76th edition of the Research Digest. This edition features articles describing the potential therapeutic benefit of low dose Naltrexone in ME/CFS and a pilot eLORETA study examining the central autonomic network involvement in PEM in ME/CFS.

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Research Digest 13/08/21

Welcome to the 75th edition of the Research Digest. This edition features a study investigating pain pressure thresholds during orthostatic stress testing in patients with ME/CFS and another study evaluating hypothalamic/pituitary autoimmunity dysfunction.

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Research Digest 30/07/21

Welcome to the 74th edition of the Research Digest. This edition features a systematic review of studies that investigate various sleep characteristics in ME/CFS and a pilot clinical trial of oral melatonin and zinc supplementation.

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