In addition to ME/CFS, it is common for people living with ME/CFS to have other conditions, including:
- pain and fatigue
- joint pain, muscle pain and nerve pain
- loose or unstable joints that may lead to dislocations
- muscle tension and weakness
- weakness of the voice box
- pelvic floor weakness, bladder or vaginal wall and nerve disorders
- swallowing difficulties
- sluggish stomach and large bowel
- nausea, vomiting, acid reflux, bloating and pain
- heart rate and blood pressure regulation problems
- temperature regulation problems
- systemic inflammation related to mast cell activation
There are thirteen subtypes of Ehlers–Danlos syndrome and most are linked to a gene, except hypermobile Ehlers-Danlos syndrome (hEDS). The type of treatment will depend on the organ that is affected and as this is a very specialised medical area, Emerge Australia recommends seeing a medical specialist who has a deep understanding of connective tissue conditions.
The Ehlers-Danlos Society has a printable diagnostic checklist, but it also notes that the diagnostic criteria is under review.
If you are experiencing fatigue or symptoms that you feel may be post-exertional malaise (PEM) connected to ME/CFS, please review our information on stop rest pace and talk to your doctor about your concerns.