What is the Patient Advisory Group?
The Patient Advisory Group exists to represent patients and carers and takes a role in reviewing and improving the support services that we offer. Emerge Australia is committed to being patient-centred across all aspects of the organisation and the Patient Advisory Group makes a critical contribution to guiding what we do and how we engage with the ME/CFS community.
The Patient Advisory Group is managed so that, as far as possible, it is representative of the Australian ME/CFS population including people who differ in illness severity (self-reported), age, location, gender and whether they are a patient or carer.
Currently 74% of the PAG is based in urban areas while 26% reside in regional areas.
Severity of illness in the PAG ranges from mild 3%, moderate 32%, moderate/severe 21%, severe 29% and carers 16%.