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Hello to all our supporters and readers of the Emerge Australia newsletter! Welcome to the August 2024 edition of our Emerge Australia newsletter.  I don’t know about you, but do you feel the year is just flying by at a really fast pace?  At Emerge Australia we certainly do, probably because of the volume of

Published: 08 August 2024 The Disability Royal Commission was a landmark moment in the lives of Australians living with disability. Emerge Australia believes the Australian Government’s response to the Disability Royal Commission does not go far enough to address the scale of violence, abuse, neglect and exploitation of people with disability, reflected in the Commission’s

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Hello to all our supporters and readers of the Emerge Australia newsletter! Thank you to our wonderful community This is the first newsletter of our new financial year and I want to say a heartfelt thank you to everyone who donated to our end of financial year (EOFY) appeal. Thank you for your donations and

Receive updates on Health Professional Education opportunities Following the success of our GP education course delivered at GPCE last year, Emerge Australia hosted an updated, CPD GP education series in May 2024 on our Learning Management System. We did this with the support of an unrestricted educational grant from Moderna. 76 GPs and Allied Health

Published: 20 June 2024 ABC’s Ali Moore in conversation with Emerge Australia CEO Anne Wilson about the importance of the governments announcement of funding updated ME/CFS clinical guidelines and what that will mean for the community. Segment starts at 1:57:12 and finishes at 2:12:20 Listen here

Read the full NewsGP article here Published 20 June 2024 The Federal Government will spend $1.1 million to have the National Health and Medical Research Council (NHMRC) develop new guidelines for long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). According to a statement from Federal Health and Aged Care Minister Mark Butler, the guidelines will

Read Minister Butler’s media release Media release: published 20 June 2024 New Hope for Australians battling ME/CFS and long COVID   Emerge Australia, the national patient organisation for people living with ME/CFS and long COVID, has welcomed Federal Government funding to update evidence based clinical guidelines, so health professionals can better diagnose and manage these

Read Emerge Australia’s media release Read Minister Butler’s media release Hello to all our supporters and readers of the Emerge Australia newsletter! As we approach the end of the financial year for 2023/24, I am delighted to share with you all the monumental decision by the Albanese Labor Government and announced by Health Minister Mark

Read Emerge Australia’s media release OFFICIAL MARK BUTLER MP MINISTER FOR HEALTH AND AGED CARE MEDIA RELEASE BACKING BELIEF WITH BETTER SUPPORT FOR PEOPLE WITH CHRONIC FATIGUE The Albanese Government has heard the calls for better support for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), long COVID and related conditions, with funding to develop new

Hello to all our supporters and readers of the Emerge Australia newsletter! As World ME Day is around the corner we are excited to provide information on what we have been up to since our last newsletter. Check out details on our theme Stop. Rest. Pace. and our 2024 campaign. On Thursday 9 May we

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Emerge Australia shares the concerns of ME/CFS patients, carers, researchers and informed clinicians with the release of the updated RACGP HANDI Guide, “Incremental physical activity for chronic fatigue syndrome/myalgic encephalomyelitis”. In 2024, ME/CFS patients should not be subjected to harmful and outdated practices. In particular, we note that the updated HANDI guide:  Isn’t evidence-based. It

Access the full survey here Download the full survey here The Department of Health and Aged Care is conducting a public consultation on the refresh of the National Strategic Framework for Chronic Conditions. They are seeking the views of a wide range of stakeholder groups, including people living with ME/CFS, long COVID and other chronic

Hello to all our supporters and readers of the Emerge Australia newsletter! What a month it has been! As most of you already are aware, our Emerge Australia team, with the support of our loyal donors and the Open Medicine Foundation, held a Roundtable event at Parliament House on 27 March 2024. Shining a light

Published: 25 March 2024 Almost a year after a parliamentary committee recommended more funding for ME/CFS support, advocates say the community’s suffering is “being compounded on all levels”. Emerge Australia has called on the federal government to unlock research and funding for those suffering from ME/CFS.The organisation recommends establishing a nationally coordinated research program into

Media Release: 27 March 2024 Sick and Tired: Casting a long shadow long COVID Inquiry 2023   Recommendation 8: The Committee recommends funding be made available for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) research and patient support and that this funding should be allocated in consultation with peak bodies for ME/CFS and with note of the recommendations

Hello to all our supporters and readers of the Emerge Australia newsletter! It’s been an unbelievably busy period in the last month and hard to believe that we are almost at Easter 2024! So much happening and so little time. Below you will read about our Round Table meeting at Parliament House in Canberra on

Published: 16 March 2024 Miquette Abercrombie describes the COVID-19 infection that changed her life as “straightforward”, but what happened afterwards was anything but. Over the 700 days since her infection, which was in April 2022, she said she has experienced hundreds of different symptoms, from fatigue, brain fog, changes to her voice and heart issues.

Published: 18 March 2024 Lynne and Michael Harris have been caring for their son since he developed ME/CFS five years ago. He lies for 24 hours a day in the dark, in silence, wearing an eye mask and earplugs. Any variation to this is a strain on his body, incredibly fatiguing and painful. Dan has

Published: 20 February 2024 It’s been four years since Tim Stannard could smell or taste anything normally, thanks to what he originally thought was “a little flu”.  “It’s debilitating. It’s depressing. Over four years now, I’ve suffered daily symptoms,” he said. Months after returning to Australia, Mr Stannard said his symptoms were getting worse.  

Hello to all our supporters and readers of the Emerge Australia newsletter! Can you believe we are already half way through February 2024? It has been a busy start to a new year that we already know will be filled with many opportunities and challenges for Emerge Australia.     Of prime importance to us

Published: 12 February 2024 The ABC’s Philip Clark was joined by Dr Richard Schloeffel OAM, Emerge Australia’s CEO Anne Wilson, and Professor Paul Fisher in discussion around Australians with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 75% of those who are women. For many years these women were fobbed off. Now “long COVID”, which is akin to ME/CFS,

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Hello to all our supporters and readers of the Emerge Australia newsletter! Welcome to our first newsletter for 2024. As the calendar turns to a new year, it’s a time of reflection, hope, and renewed commitment. 2023 was a year of significant strides and achievements, thanks to your unwavering support and the collective effort of our

Published: 9 January 2024 The recently published NDIS Review report, Working together to deliver the NDIS, recommends significant changes to the Scheme.  Emerge Australia welcomes the report, recognising the Scheme is not working for many people with disability, “People living with ME/CFS, long COVID and other post-infection diseases welcome the NDIS Review recommendation that NDIS

Hello to all our supporters and readers of the Emerge Australia newsletter! It is hard to believe this is our last newsletter for 2023.  And what an amazing year it has been thanks to you our community, our wonderful donors, our philanthropic partners and of course the support of both federal and state governments. This

Our International Roundup provides a brief snapshot of some of the ME/CFS research funding, clinical care and advocacy actions around the world in the last few months.

Published: 2nd December 2023 This story was presented by Samantha Tindall, from Wollongong, under an IDPWD program to get people living with a disability to produce a story about themselves or others. Samantha lives with ME/CFS. She spoke to Tilly, who also has ME/CFS, and Emerge Australia Chief Executive Officer Anne Wilson to shine a

Published: 19 November 2023 Emerge Australia’s Nurse Educator Kate Herbert spoke with the ABC about the inclusivity of people living with a chronic illness, such as ME/CFS, are neurodivergent, or have a disability, in future disaster and severe weather event plans. Ms Herbert wants to start a conversation about how people who fall into those