People who are bedbound by ME/CFS live each day with limited energy and require a significant level of care to meet their basic daily needs. Â
Approximately 25% of people with ME/CFS are so severely impacted that they are housebound or bedbound.
As you continue to learn more about the needs and preferences of your person with ME/CFS, the importance of honouring their autonomy, dignity and independence has most likely become an important consideration for you.
Building a successful caring partnership relies on clear and frequent communication to understand the needs and boundaries of both the person you care for and yourself.
Since becoming a carer of a person living with ME/CFS, you may have made some small or big changes in your life. Self-care is an important part of life but can often be the first thing we stop when life gets busy or priorities change.
As a carer of a person living with ME/CFS there may be times when you are called upon to provide support through advocacy. This could be with healthcare professionals, service providers, workplaces or even within your family or friendship circle.
ME/CFS is a complex and disabling disease that affects many systems of the body. These include, but are not limited to, the brain, muscles, digestive, immune and cardiac systems.
Emerge Australia
Level 7, 276 Flinders Street
Melbourne VIC 3000
[email protected] Â Â Â Â Â 1800 865 321
03 9529 1344
Media enquiries
Claire Heaney
Email:Â [email protected]
Emerge Australia is registered as a charity with the Australian Charities and Not-for-profits Commission (ACNC). We are authorised by the Australian Tax Office as a deductible gift recipient (DGR).
ABN/DGR: 22 385 438 041
Donations of $2 or more are tax-deductible.
Emerge Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Custodians of the land and pays respect to their Elders past and present.