Published November 2022 Statement Emerge Australia uses the name ME/CFS as an umbrella term to encompass the varied diagnoses for which PEM is the core feature. Emerge Australia will continue to use this term until the science has definitively concluded whether the illness is one or more separate conditions, and there is consensus on a
Although there are no TGA approved treatments for ME/CFS or Long COVID, healthcare practitioners can do a lot to support people with these conditions. This includes helping patients with:
Energy management: pacing and rest
Step-wise symptom management
Practical support
In addition to our healthcare practitioner information, the Emerge Australia webpage has a wealth of information practitioners may find helpful to share with their patients.
The National Disability Insurance Scheme (NDIS) aims to give people with disabilities (and their carers) choice and control over the services and support they receive but many people living with ME/CFS face significant challenges gaining access to the scheme and receiving adequate funding. Anecdotal evidence suggests many people with ME/CFS are rejected from the NDIS
People with ME/CFS and Long COVID are not able to do all of the activities they used to be able to do. We experience an increase in symptoms after simple activities that would not have been a problem before ME/CFS or Long COVID came into our lives.
To manage your ME/CFS well, you will need a number of different healthcare professionals to help you deal with your ME/CFS symptoms and any other health conditions you may have.
Many doctors and other healthcare professionals do not specialise in ME/CFS, but they can play a valuable part in your care and health management.
Many symptoms of ME/CFS can make communicating difficult. Some people who live with ME/CFS report that at times they struggle to recall information, lose their train of thought easily and find comprehending and processing new information difficult.
Anil van der Zee lives with severe ME and has given permission for Emerge Australia to share his lived experience. Anil van der Zee May 1, 2023 Before this year, I was too ill for approximately five years, which prevented me from even thinking about anything related to dancing. A mixture of it being
Advance care planning promotes care that is consistent with a person’s goals, values, beliefs and preferences. It prepares the person and others to plan for future health care, for a time when the person may no longer be able to communicate those decisions themselves.
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