Media Release: 12 October 2022
How Would You Cope facing the daily battle of Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), for which there is no known cure?
Click the Links below to listen to Emma and Caitlin’s stories.
How Would You Cope?
Members of Parliament across Australia are set to come face-to-face with the harsh reality of the impact and destruction of the lives of tens of thousands of Australians facing the daily battle of Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), for which there is no known cure.
Research has revealed 75% of those impacted are women, and only 5% to 10% of all people impacted by ME/CFS return to their pre-illness status.
Anne Wilson, CEO of Emerge Australia said the ‘How Would You Cope?’ campaign has been designed to alert all Australian Members of Parliament, especially Health Ministers, to the urgent need to adequately fund research and services.
Ms. Wilson said a nationally coordinated campaign in response to the life destroying illness and hardships which patients, families, and the medical profession face every day is urgently required.
The ‘How Would You Cope?’ campaign is aimed at providing all Federal Members of Parliament, including the House of Representatives Health Committee, with personal knowledge of the daily survival challenges of 250,000 Australians impacted by ME/CFS.
Ms Wilson said despite limited funds allocated to ME/CFS services and research over the years, the current focus on COVID and Long COVID research to the exclusion of ME/CFS is a serious omission.
This omission is made even more serious given the significant and disproportionate impact ME/CFS has on women, and the focus on women’s issues in the new Parliament.
“Emerge Australia urges the Federal Government to act and invest in addressing this disease that so many women and men are impacted by. They have been left out for far too long. We urgently need a national post infectious disease strategy” Ms Wilson said.
Real Stories, Real People that reveal major issues for all Members of Parliament facing the forgotten Australians with ME/CFS.
Anne Wilson, CEO, Emerge Australia is available for media interviews
Ron Smith OAM, Media Communications, Emerge Australia
Mobile: 0417 329 201