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Research Digest

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A woman with mecfs laying in bed.

Pacing and Rest Position Statement

Pacing and rest are individualised and essential management techniques for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Pacing and rest promote safe levels of activity to manage post-exertional malaise (PEM), the hallmark symptom of ME/CFS.

Webinar Series

As part of Emerge Australia’s commitment to providing up-to-date and evidence based management techniques we have launched a recurring webinar series. You can find those as well all the recent recordings from previous events below. Living with ME/CFS Q&A with Dr Richard Schloeffel OAM World ME/CFS Symposium 2023 Basics of ME/CFS Q&A with Dr Richard

Preparing information for your doctor

Many symptoms of ME/CFS can make communicating difficult. Some people who live with ME/CFS report that at times they struggle to recall information, lose their train of thought easily and find comprehending and processing new information difficult.

A man with mecfs laying in bed with headphones on.

What is ME/CFS?

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.

A man with mecfs laying in bed with headphones on.

ME/CFS – what’s in a name?

Published November 2022  Statement   Emerge Australia uses the name ME/CFS as an umbrella term to encompass the varied diagnoses for which PEM is the core feature. Emerge Australia will continue to use this term until the science has definitively concluded whether the illness is one or more separate conditions, and there is consensus on a

A stethoscope and a tablet with the words long covid and mecfs.

GP Education at GPCE in 2023

In 2022, Emerge Australia’s Medical Director, Dr Richard Schloeffel, OAM presented the keynote address at four General Practitioner Conference and Exhibitions (GPCE) with overwhelmingly positive feedback. At these conferences, we demystified the disease by presenting the latest research and providing practical, applicable management options to create a better experience for the patient.    Another theme from our

A person with mecfs holding a pen.

NDIS Petitions 2018 and 2019

In 2018, Emerge Australia launched a paper petition to demand better access to the NDIS for people with ME/CFS. After gathering 1400 signatures, it was tabled in Parliament by Greens MP Adam Bandt on 5 December 2018. We launched the same petition online and over 10,273 people signed. The petition has paved the way for

A woman with mecfs wearing a headset in front of a computer.

Telehealth Campaign

In March this year, the federal government made a range of telehealth medical services temporarily available through Medicare. After many years of campaigning for telehealth services for people living with ME/CFS and other chronic illnesses, Emerge Australia and the ME/CFS community have warmly welcomed this change. The current arrangements were originally intended to expire in

A group of people holding hands in a circle, united against ME/CFS.

Management and Support

Although there are no TGA approved treatments for ME/CFS or Long COVID, healthcare practitioners can do a lot to support people with these conditions. This includes helping patients with:

Energy management: pacing and rest
Step-wise symptom management
Practical support
In addition to our healthcare practitioner information, the Emerge Australia webpage has

A doctor is providing support to an elderly woman with mecfs.

Access and equity for the NDIS and the DSP

The National Disability Insurance Scheme (NDIS) aims to give people with disabilities (and their carers) choice and control over the services and support they receive but many people living with ME/CFS face significant challenges gaining access to the scheme and receiving adequate funding. Anecdotal evidence suggests many people with ME/CFS are rejected from the NDIS

A graph displays the incorporation of ME/CFS in relation to the corona virus.

Post-Infection disease: Australia’s 10th National Health Priority Area

Emerge Australia strongly advocates for the Federal Department of Health to make post-infection disease Australia’s 10th National Health Priority Area (NHPA). The number of Australians living with post-infection disease is rapidly increasing, predicted to be over half a million by the end of 2022, due to a new cohort of post-infection disease patients: those with

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Positioner Test

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What is the NDIS?

The National Disability Insurance Scheme is designed to give people with disabilities the support they need to live independent, ordinary lives. It is not means tested – anyone with any level of income or assets can apply, as long as they meet the criteria of having a significant functional impairment. The insurance-based scheme provides disability-related

Two men with ME/CFS sitting at a table talking to a doctor.

Building your healthcare team

To manage your ME/CFS well, you will need a number of different healthcare professionals to help you deal with your ME/CFS symptoms and any other health conditions you may have.

Many doctors and other healthcare professionals do not specialise in ME/CFS, but they can play a valuable part in your care and health management.

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