Many people don’t see themselves as carers, they see themselves as parents, partners, children, family or friends. Being a carer for a person living with ME/CFS is a fulfilling yet challenging experience. A diagnosis of ME/CFS can raise many questions, some of which do not have simple answers. There is often a lot of information to absorb, and advice available from many different sources, meaning at times it can be overwhelming.
This webpage and the linked factsheets have been created to support you in your caring journey. If you have questions or require additional support, please contact our InfoLine team on 1800 865 321 or send us a message here.
Carer Gateway – making sure you get the help you need
The Carer Gateway is an Australian Government initiative that delivers new, improved and expanded services to carers across Australia. Through the Gateway you can get the practical support and advice that you need including information, counselling, peer support and respite care.
Visit www.carergateway.gov.au or call 1800 422 737
People who are bedbound by ME/CFS live each day with limited energy and require a significant level of care to meet their basic daily needs.
Approximately 25% of people with
Since becoming a carer of a person living with ME/CFS, you may have made some small or big changes in your life. Self-care is an important part of life but
As a carer of a person living with ME/CFS there may be times when you are called upon to provide support through advocacy. This could be with healthcare professionals, service
ME/CFS is a complex and disabling disease that affects many systems of the body. These include, but are not limited to, the brain, muscles, digestive, immune and cardiac systems.
As you continue to learn more about the needs and preferences of your person with ME/CFS, the importance of honouring their autonomy, dignity and independence has most likely become an
Building a successful caring partnership relies on clear and frequent communication to understand the needs and boundaries of both the person you care for and yourself.