Carers

Many people don’t see themselves as carers, they see themselves as parents, partners, children, family or friends. Being a carer for a person living with ME/CFS is a fulfilling yet challenging experience. A diagnosis of ME/CFS can raise many questions, some of which do not have simple answers. There is often a lot of information to absorb, and advice available from many different sources, meaning at times it can be overwhelming. 

This webpage and the linked factsheets have been created to support you in your caring journey. If you have questions or require additional support, please contact our InfoLine team on 1800 865 321 or send us a message here.

Carer Gateway – making sure you get the help you need

The Carer Gateway is an Australian Government initiative that delivers new, improved and expanded services to carers across Australia. Through the Gateway you can get the practical support and advice that you need including information, counselling, peer support and respite care.

Visit www.carergateway.gov.au or call 1800 422 737

Autonomy, Dignity and Independence

As you continue to learn more about the needs and preferences of your person with ME/CFS, the importance of honouring their autonomy, dignity and independence has most likely become an

Self-care for Carers

Since becoming a carer of a person living with ME/CFS, you may have made some small or big changes in your life. Self-care is an important part of life but

Advocacy for Carers

As a carer of a person living with ME/CFS there may be times when you are called upon to provide support through advocacy. This could be with healthcare professionals, service

ME/CFS Explained for Carers

ME/CFS is a complex and disabling disease that affects many systems of the body. These include, but are not limited to, the brain, muscles, digestive, immune and cardiac systems.

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