Help transform ME/CFS care for over 250,000 Australians living with ME/CFS because people with ME/CFS matter. For too long, they have been left behind.
In Australia today, hundreds of thousands of people with ME/CFS are fighting two battles: one against their debilitating condition, and another within a healthcare system that lacks the resources to understand them.
Meet Shiloh
Shiloh Moore is a tireless advocate, master meditator, proud aunty, mentor, friend, family member, creative artist, writer, author, musician, songwriter, profound thinker, philosopher, spiritual explorer, and lover of life who has lived with severe ME/CFS and Fibromyalgia for 35 years.
"I grew up in an unconditionally loving environment and had a blissful childhood until I became sick with severe fibromyalgia and ME/CFS when I was 10 years old in 1990. I was not diagnosed for four years. Doctors said I had growing pains and nobody else complained about their growing pains, so I thought it was naughty to complain, and I tried hard not to."
Shilohs story is sadly typical.
A bright, high-achieving child who loved school, music, sports, and various activities, she was eventually forced to give them all up by age 14. By 16, she was completely bedridden, unable to bathe or feed herself.
Today, 35 years later, Shiloh lives with constant severe pain that has never dropped below seven out of ten since she was 13. She needs to lie down 20 to 22 hours a day and requires three to six hours of complete rest with no stimulus every single day.
"I have had periods of unbelievable pain off the charts, but I know it can always get worse, as it does."
Were Building Bridges at Every Level
Emerge Australia is connecting patients with ME/CFS, long COVID and associated conditions with better care on multiple fronts. We've been actively educating federal ministers about the severe impact of these conditions on the Australian community.
This vital advocacy work is opening doors at the policy level, while we simultaneously address the knowledge gap that healthcare professionals face every day. Many dedicated doctors want to provide appropriate care but haven't had access to the specialised education needed to understand complex conditions like these.
That's why we've commenced development of a comprehensive Emerge Australia GP Education platform - a bridge between medical professionals and the evidence-based knowledge they need.
Your Support Will Strengthen Our Educational Foundation
We need to raise $75,000 to advance Emerge Australia's clinical education system with resources that will:
💙 Provide healthcare practitioners with evidence-based diagnostic and management tools they currently lack
💙 Create accessible, engaging training materials designed for busy medical professionals
💙 Build a supportive community of informed healthcare providers across Australia
As Shiloh powerfully states: "I have been so fortunate to have people hold me in my pain and say they don't understand, but they believe me, and they support me." This is exactly the mindset we need to foster in medical professionals across Australia.
All donations over $2 are fully tax deductible, your donation ensures that frontline medical professionals receive the educational support they need but currently lack.
Will you help build the bridge to better care today?
Shiloh envisions "a specialty for ME/CFS, Fibromyalgia, and long COVID, with specialist doctors whose primary area of expertise is ME" and "a chain of bulk-billed specialist centres all around the country." Our GP Education platform is a crucial step toward building this vision.
With your help today, we can continue building the bridge that connects ME/CFS patients with informed, compassionate care. Your gift directly helps people like Shiloh who have spent decades searching for healthcare providers who understand their condition.
