Telehealth Nurse Service

We are pleased to have been chosen as one of the eleven organisations in the Centre for Community-Driven Research's (CC-DR) pilot project Patient Pathways Program (Telehealth Nurse Case Management).

The program aims to:

evaluate whether telehealth nursing consultations are an effective support tool for people who have or who are affected by ME/CFS
inform and advocate for programs and systems change using the information gathered to improve the quality of life for people who are affected by ME/CFS

Please note that we only provide this service to people living in Australia.

Purpose of the consultation

The Telehealth Nurse Service consultations are conducted with a registered nurse over the phone, at no cost to the individual.

The consultation will cover:

medical history
personal history
other relevant information relating to your treatments and general quality of life

You can ask for the consultations to be done within your energy envelope, with a full consultation usually lasting for an hour. Many people split this into two or three sessions - this can be arranged with the nurse during your initial connection with the service.

Once the full consultation has been conducted, a summary of the information you have provided will be developed. This summary, along with any additional resources, will then be sent to you.

On request, a report based on the summary can be forwarded to your GP or healthcare practitioner.

Delivery of the service

The Telehealth Nurse Service has assisted clients with topics such as the Disability Support Pension (DSP), National Disability Insurance Scheme (NDIS) and help with effective pacing. Home respite options have been explored and symptom management strategies are often discussed. The service has also provided letters of support for people seeking assistance with a variety of topics, and who trust us to speak on their behalf.

The service has received overwhelmingly positive feedback from patients and carers, who report that they feel more empowered during their medical consultations, and who have had success in obtaining services that improve their quality of life.

The service will continue to evaluate the needs of the ME/CFS community and to build greater resources.

The telehealth nurse provides a case management service only. If you need medical advice, please contact your doctor.

Latest

Research Digest 07/08/20

Welcome to the 53rd edition of the Research Digest. This fortnight's edition features a ME/CFS focused edition of the journal WORK: A Journal of Prevention, Assessment and Rehabilitation.
Research Digest 24/07/20

Welcome to the 52nd edition of the Research Digest. This fortnight's edition features a doppler study of cerebral blood flow when performing a 70-degree head-up tilt test and a perspective paper that discuses ways in which healthcare practitioners can support and provide care to ME/CFS patients.
Research Digest 10/07/20

Welcome to the 51st edition of the Research Digest featuring a study aimed at identifying possible epidemiological and/or clinical factors that could be associated with PEM severity and a UK study into the factors that influence the frequency of GP visits by patients with ME/CFS.
Research Digest 26/06/20

Welcome to the 50th edition of the Research Digest! This edition features a study comparing subjective and objective measures of physical activity in ME/CFS patients and a study that measured and assessed factors that impact on health-related quality-of-life measures in adolescents.

Campaign for ME

Coronavirus and ME - Simplified facts

Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.
Accessibility
Research Digest 10/07/20

Welcome to the 51st edition of the Research Digest featuring a study aimed at identifying possible epidemiological and/or clinical factors that could be associated with PEM severity and a UK study into the factors that influence the frequency of GP visits by patients with ME/CFS.
Bunnings Sausage Sizzle Raises Money for Emerge Australia

'We just wanted to do something for our daughter who was diagnosed about five years ago with sudden onset ME/CFS,' Peter and Bronwyn said. '...after considering a few different options for raising money, we thought about a Bunnings BBQ.'
Health and Wellbeing Survey

Emerge Australia published results from its first ME/CFS Health and Wellbeing Survey in 2018 and launched another survey in 2019. We plan to stay current and informed about the needs of the ME/CFS community by running an updated version of this Health and Wellbeing Survey every three years.
Disability Support Pension

The Disability Support Pension (DSP) is a Centrelink payment providing financial support if you have a physical, intellectual or psychiatric condition that stops you from working. Click here to access resources developed to assist people with ME/CFS to understand DSP and what is required to apply.
Coronavirus and ME

We know that many people with ME/CFS (as well as those caring for them) are experiencing concern about the spread of, and possibly contracting, coronavirus. We recognise that people with chronic illness have valid reasons for additional caution at this time.
Help us to educate people in power about ME/CFS

Help us to continue to improve our ability to educate people in power and people caring for those with ME/CFS
Research Digest 12/06/20

Welcome to the 49th edition of the Research Digest featuring a study investigating the role that Human herpesvirus 6A may play in ME/CFS pathogenesis and an Australian literature review on metabolomic dysregulation in ME/CFS.
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