Telehealth Nurse Service

We are pleased to have been chosen as one of the eleven organisations in the Centre for Community-Driven Research's (CC-DR) pilot project Patient Pathways Program (Telehealth Nurse Case Management).

The program aims to:

evaluate whether telehealth nursing consultations are an effective support tool for people who have or who are affected by ME/CFS
inform and advocate for programs and systems change using the information gathered to improve the quality of life for people who are affected by ME/CFS

Please note that we only provide this service to people living in Australia.

Purpose of the consultation

The Telehealth Nurse Service consultations are conducted with a registered nurse over the phone, at no cost to the individual.

The consultation will cover:

medical history
personal history
other relevant information relating to your treatments and general quality of life

You can ask for the consultations to be done within your energy envelope, with a full consultation usually lasting for an hour. Many people split this into two or three sessions - this can be arranged with the nurse during your initial connection with the service.

Once the full consultation has been conducted, a summary of the information you have provided will be developed. This summary, along with any additional resources, will then be sent to you.

On request, a report based on the summary can be forwarded to your GP or healthcare practitioner.

Delivery of the service

The Telehealth Nurse Service has assisted clients with topics such as the Disability Support Pension (DSP), National Disability Insurance Scheme (NDIS) and help with effective pacing. Home respite options have been explored and symptom management strategies are often discussed. The service has also provided letters of support for people seeking assistance with a variety of topics, and who trust us to speak on their behalf.

The service has received overwhelmingly positive feedback from patients and carers, who report that they feel more empowered during their medical consultations, and who have had success in obtaining services that improve their quality of life.

The service will continue to evaluate the needs of the ME/CFS community and to build greater resources.

The telehealth nurse provides a case management service only. If you need medical advice, please contact your doctor.

Latest

Research Digest 29/05/20

Welcome to the 48th edition of the Research Digest featuring a study that investigates differences in immune gene SNP expression in ME/CFS and a systematic review on neurological impairments as measured by neuroimaging techniques.
Research Digest 15/05/20

Welcome to the 47th edition of the Research Digest. This fortnight's edition digests a whole brain MRS study looking at metabolite abnormalities in the brains of ME/CFS patients and a French study investigating muscle excitability in exercising and resting muscles of patients diagnosed with ME/CFS.
National Volunteer Week

Emerge Australia is incredibly grateful for the many volunteers who contribute to the delivery of our services and programs, in support of all Australians living with ME/CFS.
ME Marathon Skate

I'm fundraising to give hope and help to the 250,000 people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) across Australia.

Campaign for ME

Coronavirus and ME - Simplified facts

Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.
Research Digest 06/03/20

Welcome to the 42nd edition, featuring a study into a potential clinically-suitable diagnostic biomarker for ME/CFS and a study that furthers our knowledge of the mitochondrial dysfunction exhibited by ME/CFS patients.
Accessibility
Research Digest 03/04/20

Welcome to the 44th edition of the Research Digest. This edition features a recently published book that highlights the value of biomedical research in ME/CFS and a systematic review into the effect of treatment interventions on pain scores in paediatric ME/CFS patients.
Research Digest 20/03/20

Welcome to the 43rd edition of the Research Digest. This fortnight's edition features two studies that investigate new approaches to the way ME/CFS can be diagnosed using microRNA analysis and fMRI.
Research Digest 24/01/20

Welcome to the 39th edition, featuring a systematic review of ME/CFS randomized controlled trials and a study into the use of heart rate variability as a non-invasive biomarker for predicting fatigue severity in ME/CFS patients.
Research Digest 15/05/20

Welcome to the 47th edition of the Research Digest. This fortnight's edition digests a whole brain MRS study looking at metabolite abnormalities in the brains of ME/CFS patients and a French study investigating muscle excitability in exercising and resting muscles of patients diagnosed with ME/CFS.
Bunnings Sausage Sizzle Raises Money for Emerge Australia

'We just wanted to do something for our daughter who was diagnosed about five years ago with sudden onset ME/CFS,' Peter and Bronwyn said. '...after considering a few different options for raising money, we thought about a Bunnings BBQ.'
Coronavirus and ME

We know that many people with ME/CFS (as well as those caring for them) are experiencing concern about the spread of, and possibly contracting, coronavirus. We recognise that people with chronic illness have valid reasons for additional caution at this time.
Research Digest 1/05/20

Welcome to the 46th edition of the Research Digest. This fortnight's edition features an Australian study examining qualitative feedback from paediatric ME/CFS patients and a study investigating the correlation between ME/CFS disease severity and cellular bioenergetic function.