Telehealth Nurse Service

We are pleased to have been chosen as one of the eleven organisations in the Centre for Community-Driven Research's (CC-DR) pilot project Patient Pathways Program (Telehealth Nurse Case Management).

The program aims to:

evaluate whether telehealth nursing consultations are an effective support tool for people who have or who are affected by ME/CFS
inform and advocate for programs and systems change using the information gathered to improve the quality of life for people who are affected by ME/CFS

Please note that we only provide this service to people living in Australia.

Purpose of the consultation

The Telehealth Nurse Service consultations are conducted with a registered nurse over the phone, at no cost to the individual.

The consultation will cover:

medical history
personal history
other relevant information relating to your treatments and general quality of life

You can ask for the consultations to be done within your energy envelope, with a full consultation usually lasting for an hour. Many people split this into two or three sessions - this can be arranged with the nurse during your initial connection with the service.

Once the full consultation has been conducted, a summary of the information you have provided will be developed. This summary, along with any additional resources, will then be sent to you.

On request, a report based on the summary can be forwarded to your GP or healthcare practitioner.

Delivery of the service

The Telehealth Nurse Service has assisted clients with topics such as the Disability Support Pension (DSP), National Disability Insurance Scheme (NDIS) and help with effective pacing. Home respite options have been explored and symptom management strategies are often discussed. The service has also provided letters of support for people seeking assistance with a variety of topics, and who trust us to speak on their behalf.

The service has received overwhelmingly positive feedback from patients and carers, who report that they feel more empowered during their medical consultations, and who have had success in obtaining services that improve their quality of life.

The service will continue to evaluate the needs of the ME/CFS community and to build greater resources.

The telehealth nurse provides a case management service only. If you need medical advice, please contact your doctor.

Latest

Research Digest 10/01/20

Welcome to the 38th edition, featuring a Nature paper examining blood lactate levels in ME/CFS patients whilst at rest and a paper investigating the effect of pharmaceutical intervention on NK cell cytotoxicity in ME/CFS patients compared to healthy individuals.
Meg's 50th Birthday Fundraiser

I'm fundraising to give hope and help to the 250,000 people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) across Australia. ME/CFS sorely lacks funding for advocacy, patient support and research, so anything you can contribute would be welcome.
Siobhan's 30th Birthday Fundraiser

I'm fundraising to give hope and help to the 250,000 people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) across Australia.
Bunnings Sausage Sizzle Raises Money for Emerge Australia

'We just wanted to do something for our daughter who was diagnosed about five years ago with sudden onset ME/CFS,' Peter and Bronwyn said. '...after considering a few different options for raising money, we thought about a Bunnings BBQ.'

Campaign for ME

Accessibility
Siobhan's 30th Birthday Fundraiser

I'm fundraising to give hope and help to the 250,000 people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) across Australia.
Bunnings Sausage Sizzle Raises Money for Emerge Australia

'We just wanted to do something for our daughter who was diagnosed about five years ago with sudden onset ME/CFS,' Peter and Bronwyn said. '...after considering a few different options for raising money, we thought about a Bunnings BBQ.'
What is ME/CFS?

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.
Research Digest 10/01/20

Welcome to the 38th edition, featuring a Nature paper examining blood lactate levels in ME/CFS patients whilst at rest and a paper investigating the effect of pharmaceutical intervention on NK cell cytotoxicity in ME/CFS patients compared to healthy individuals.
Treatment and management

The goal of treatment for people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) is to improve a patient's quality of life and to provide relief from symptoms.
Health and Wellbeing Survey

Emerge Australia published results from its first ME/CFS Health and Wellbeing Survey in 2018 and launched another survey in 2019. We plan to stay current and informed about the needs of the ME/CFS community by running an updated version of this Health and Wellbeing Survey every three years.
Disability Support Pension

The Disability Support Pension (DSP) is a Centrelink payment providing financial support if you have a physical, intellectual or psychiatric condition that stops you from working. Click here to access resources developed to assist people with ME/CFS to understand DSP and what is required to apply.
National Disability Insurance Scheme

The National Disability Insurance Scheme (NDIS) is designed to help support people with disability. Click here to access resources developed to assist people with ME/CFS to understand the NDIS and what is required to apply.
Research Digest 17/05/19

Welcome to the 23rd edition, featuring articles on the validation of impaired transient receptor potential melastatin 3 ion channel activity in natural killer cells from ME/CFS patients, and markers of non-coeliac wheat sensitivity in patients with ME/CFS.