Emerge Australia Online Community

The Emerge Australia Online Community aims to provide a safe and supportive space for people affected by ME/CFS, their carers and families.

Would you like to discuss your experiences with people who have similar experiences?
Would you like to find, receive and provide support to others?

We offer a program of online community groups for patients, carers and others plus an online ME/CFS community forum.

Forum

Our forum can be viewed by anyone, but to be able to interact with others and post in the forum you need to register. Registration is free but all accounts require approval by an administrator so there will be a short delay (can be up to 24hrs) before you are able to post and interact in the forum. Your contact details are kept confidential.

When you join, choose a username that is appropriate and non-offensive
The forum is an open forum which means that posts are visible to the public - alongside the username of the author
No advertising or self promotion is allowed except where written permission has been sought and granted by Emerge Australia (contact [email protected] for permission / questions)
The aim of the community is to provide support not medical advice

We encourage forum members to seek advice and support from others, and to share their own advice and experiences. Australian law forbids the provision of medical advice outside of licensed professionals. This means that while you can share your own experiences of treatments, medications, changes to medications and therapeutic exercise, you must not tell someone else to start, stop, modify, add, resume, change, adjust, commence or cease any of the above in any fashion.

We appreciate that finding the right balance between sharing experiences and giving advice is challenging – community moderators will assist in finding this balance. It is also important to recognise that what might have worked for you in managing your own symptoms may not work for others. There are no proven treatments or cures of ME/CFS.

Register for the Emerge Australia ME/CFS Forum

Online Community Groups

Our online community groups provide a facilitated online meeting space for people who live with ME/CFS, care for someone with ME/CFS or who have an interest in working with others on issues that impact people living with ME/CFS. Through this program we are able to offer facilitated peer support for patients and carers, a place for community building (a meet up space for people with similar interests) and online classes suitable for people with limitations caused by living with ME/CFS.

The project is currently in a pilot phase - we welcome your thoughts and feedback as we develop it further.

Our online community groups have 4 core themes:-

Patient-support
Carer-support
Community-building
Learning

You can find more detail on each theme, groups that are scheduled to begin and upcoming meeting dates by clicking the button below.

Explore Online Community Groups

Latest

Research Digest 12/02/21

Welcome to the 63rd edition of the Research Digest. This edition features a study investigating the impact that ME/CFS has on the quality of life of a patients' close family members, and a study identifying and measuring the epigenetic changes in the DNA of ME/CFS patients.
Mindful Meditation Class for People with ME/CFS - Online Group

One of our online community classes for people with ME/CFS. Details of our online mindful meditation class for people who live with ME/CFS.
Mindful Doodling Class for People with ME/CFS - Online Group

One of our online community classes for people with ME/CFS. Details of our online mindful doodling class for people who live with ME/CFS.
Beginners Crochet Class for People with ME/CFS - Online Group

One of our online community classes for people with ME/CFS. Details of our online beginners crochet class for people who live with ME/CFS.

Emerge Australia Online Community Groups
Long Covid Offers Hope for ME/CFS

In the midst of the COVID-19 pandemic which has wreaked havoc around the world, ME/CFS has come into the spotlight.
Australian Research Centre to Open Early in 2021

The new Australian ME/CFS Centre for Collaborative Research is expected to officially open early in 2021
Coronavirus and ME - Simplified facts

Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.

Open Medicine Foundation Australia

Emerge Australia is proud to be launching the 5th addition to a global network of OMF-established Collaborative Research Centres, with our partner, Open Medicine Foundation, seeing an Australian centre join with those at Harvard, Stanford, Uppsala, and Montreal universities.
Research Digest 30/10/20

Welcome to the 58th edition of the Research Digest featuring a focus group study that aimed to gain insight into the PEM experiences of ME/CFS patients and a cluster analysis study defining subgroups of patients based on several measures of autonomic dysfunction.
Australian Research Centre to Open Early in 2021

The new Australian ME/CFS Centre for Collaborative Research is expected to officially open early in 2021
Research Digest 04/09/20

Welcome to the 54th edition of the Research Digest. This fortnight's edition includes summary of a functional MRI study exploring brain responses to autonomic challenges in ME/CFS patients with and without temporomandibular disorder.
Coronavirus and ME - Simplified facts

Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.
Research Digest 13/11/20

Welcome to the 59th edition of the Research Digest. This issue features a review article on the eitology of ME/CFS and a systematic review of neuroimaging studies.
Research Digest 16/10/20

Welcome to the 57th edition of the Research Digest featuring the results of the NHMRC ME/CFS Targeted Call for Research funding and a study that aimed to compare the subjective severity scoring of the SF-36 (based on the physical activity subscale) to two objective measures of activity in order to validate the way in which clinical severity is graded in ME/CFS.
Research Digest 29/01/21

Welcome to the 62nd edition of the Research Digest featuring a study investigating the predictors of tachypnea in ME/CFS patients and a literature review examining GP knowledge and understanding of ME/CFS.
Accessibility
Research Digest 07/08/20

Welcome to the 53rd edition of the Research Digest. This fortnight's edition features a ME/CFS focused edition of the journal WORK: A Journal of Prevention, Assessment and Rehabilitation.