Emerge Australia Online Community

The Emerge Australia Online Community aims to provide a safe and supportive space for people affected by ME/CFS, their carers and families.

Would you like to discuss your experiences with people who have similar experiences?
Would you like to find, receive and provide support to others?

We offer a program of online community groups for patients, carers and others plus an online ME/CFS community forum.

Forum

Our forum can be viewed by anyone, but to be able to interact with others and post in the forum you need to register. Registration is free but all accounts require approval by an administrator so there will be a short delay (can be up to 24hrs) before you are able to post and interact in the forum. Your contact details are kept confidential.

When you join, choose a username that is appropriate and non-offensive
The forum is an open forum which means that posts are visible to the public - alongside the username of the author
No advertising or self promotion is allowed except where written permission has been sought and granted by Emerge Australia (contact [email protected] for permission/questions)
The aim of the community is to provide support not medical advice

We encourage forum members to seek advice and support from others, and to share their own advice and experiences. Australian law forbids the provision of medical advice outside of licensed professionals. This means that while you can share your own experiences of treatments, medications, changes to medications and therapeutic exercise, you must not tell someone else to start, stop, modify, add, resume, change, adjust, commence or cease any of the above in any fashion.

We appreciate that finding the right balance between sharing experiences and giving advice is challenging – community moderators will assist in finding this balance. It is also important to recognise that what might have worked for you in managing your own symptoms may not work for others. There are no proven treatments or cures of ME/CFS.

Register for the Emerge Australia ME/CFS Forum

Online Community Groups

Our online community groups provide a facilitated online meeting space for people who live with ME/CFS, care for someone with ME/CFS or who have an interest in working with others on issues that impact people living with ME/CFS. Through this program we are able to offer facilitated peer support for patients and carers, a place for community building (a meet up space for people with similar interests) and online classes suitable for people with limitations caused by living with ME/CFS.

The project is currently in a pilot phase - we welcome your thoughts and feedback as we develop it further.

Our online community groups have three core themes:

Patient-support
Carer-support
Community-building

You can find more detail on each theme, groups that are scheduled to begin and upcoming meeting dates by clicking the button below.

Explore Online Community Groups

Latest

Telehealth Position Statement

Emerge Australia welcomes the Federal Government’s announcement that Medicare rebates will be made permanent for online and over-the-phone telehealth services provided by GPs, specialists and allied health practitioners.
Research Digest 23/12/21

Welcome to the 80th edition of the Research Digest. This edition summarises research papers trialling CT38s to investigate the involvement of the corticotropin-releasing factor system in ME/CFS and an Australian study observing the impact of life stressors, on those living with ME/CFS. The 80th and final edition of the research digest is concluded for 2021, with Emerge Australia’s full-page advertisement in the AFR, providing ME/CFS a voice in the national Long COVID conversation.
New research reinforces the many symptoms shared by those living with ME/CFS and Long COVID

This editorial draws together findings from several articles in the journal’s special issue about ME/CFS. As the title of the article suggests, the authors argue we are currently “turning a corner” in ME/CFS research.
Global literature review reveals 25 of 29 ME/CFS symptoms are shared by those with Long COVID

The overlap is even greater than we thought. Global literature review reveals 25 of 29 ME/CFS symptoms are shared by those with Long COVID.

Link between Long COVID and ME/CFS could transform the lives of those impacted

UK Times article on how the focus Long COVID is bringing to post-viral fatigue conditions could transform the lives of all those living with them.
Could Long COVID be the best thing that ever happened to ME/CFS?

It's called Long COVID, often Long-haul COVID and sometimes Post Acute Sequelae of COVID-19 (PASC). Last week the World Health Organisation announced a definition for what it calls "post COVID-19 condition", affecting people at least two months after a COVID-19 infection with symptoms that “cannot be explained by an alternative diagnosis”.
Remind your GP

Module 2 of our GP Education program focuses on ensuring a patient-centered approach to care for people living with ME/CFS. Has your GP completed it yet?
Australian Research Centre to Open Early in 2021

The new Australian ME/CFS Centre for Collaborative Research is expected to officially open early in 2021
Coronavirus and ME - Simplified facts

Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.