Health and Wellbeing Survey 2019 Emerge Australia conducted a second Health and Wellbeing Survey of people living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) in 2019. An impressive 1,055 participants from around Australia answered 60 questions covering demographics, caring responsibilities, ME/CFS onset and symptom experience, access to healthcare and other services, and the effect of living with ME/CFS on social and economic circumstances. They also provided insight on the greatest barriers faced in accessing healthcare services and identified opportunities for improvement. Lifelong Lockdown: Lessons Learned from the Health and Wellbeing Survey of Australians Living with ME/CFS 2019 was published in October 2020. Our findings paint a detailed picture of the experiences of people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The full report can be downloaded here. The full report includes a range of recommendations to be considered by policy makers, service providers and healthcare practitioners who aim to deliver more equitable and outcome-focused health and social care supports for people with ME/CFS and other chronic illnesses. The recommendations include that: employers and educators working with employees and students with ME/CFS familiarise themselves with the range of symptoms associated with living with this condition, and make appropriate and reasonable adjustments for that person/s. This may include flexible hours and options to work and learn from home the National Disability Insurance Agency (NDIA) boost their capacity to efficiently and accurately assess people living with ME/CFS the Royal Australasian College of Physicians ME/CFS clinical guidelines be replaced with up-to-date, fit-for-purpose guidance to support GPs and other practitioners in their work with ME/CFS patients telehealth services be made permanently available through Medicare for people with ME/CFS and other chronic illnesses Emerge Australia are incredibly grateful to everyone who took part in this survey and made this research project possible.