What is the Patient Advisory Group?

The Patient Advisory Group exists to represent patients and carers and takes a role in reviewing and improving the support services that we offer. Emerge Australia is committed to being patient-centred across all aspects of the organisation and the Patient Advisory Group makes a critical contribution to guiding what we do and how we engage with the ME/CFS community. 

The Patient Advisory Group is managed so that, as far as possible, it is representative of the Australian ME/CFS population including people who differ in illness severity (self-reported), age, location, gender and whether they are a patient or carer. 

Currently 74% of the PAG is based in urban areas while 26% reside in regional areas. 

Severity of illness in the PAG ranges from mild 3%, moderate 32%, moderate/severe 21%, severe 29% and carers 16%.  

Current PAG State Distribution

Expressions of interest currently sought 

The Emerge Australia Patient Advisory Group is seeking expressions of interest from people based in the Northern Territory. You may be a person living with ME/CFS or a carer. If you are interested in being involved, please complete the form below. 

Patient Advisory Group - Expression of Interest form 

Please note. only those who have expressed interested from the NT will be contacted. If you are from another state or territory and choose to complete the EOI form, your details will be retained and utilised for future recruitment efforts.