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  • position-statements
  1. About us
  2. Position Statements

Position Statements

Emerge Australia offers official position statements on specific subjects of relevance to the Australian ME/CFS community and Health Professionals.

Post-Infection disease: Australia’s 10th National Health Priority Area

Post-Infection disease: Australia’s 10th National Health Priority Area

Emerge Australia strongly advocates for the Federal Department of Health to make post-infection disease Australia’s 10th National Health Priority Area (NHPA). The number of Australians living with post-infection disease is rapidly increasing, predicted to be over half a million by the end of 2022, due to a new cohort of post-infection disease patients: those with Long COVID. Read more

Published: 21st November, 2022

Updated: 30th November, 2022

Author: Laura Kool

National Disability Insurance Scheme Position Statement

National Disability Insurance Scheme Position Statement

ME/CFS is a permanent condition for most people. Less than 10% recover to pre-illness functioning and 20% of patients may worsen with time.[1] Despite this, many people with ME/CFS experience significant difficulties accessing the National Disability Insurance Scheme (NDIS). Read more

Published: 4th November, 2022

Updated: 21st November, 2022

Author: Laura Kool

Optimal Care Referral Pathway Position Statement

Optimal Care Referral Pathway Position Statement

A national, Optimal Care Referral Pathway (OCRP) will provide all people with ME/CFS consistent care across Australia, using an evidence-based, best practice pathway that empowers patients and clinicians to navigate support of complex, multi-system conditions such as ME/CFS, and other post infection diseases, such as Long COVID. Read more

Published: 4th November, 2022

Updated: 21st November, 2022

Author: Laura Kool

Recovery Position Statement

Recovery Position Statement

The research literature about recovery from ME/CFS is inconsistent, making firm conclusions about recovery rates difficult. In particular, most studies of recovery don’t include a return to pre-illness function as part of their definition of “recovery” and would be more accurately considered studies on rates of improvement than recovery1. Read more

Published: 17th August, 2022

Updated: 18th November, 2022

Author: Jonathan Stavridis

Diagnostic Criteria Position Statement

Diagnostic Criteria Position Statement

There are approximately 20 different sets of diagnostic criteria for ME/CFS which have been developed over the history of the disease. This has created inconsistency in research, as different diagnostic criteria result in participant samples which are not easily compared between studies. Read more

Published: 21st March, 2022

Updated: 23rd September, 2022

Author: Membership Administrator

Links between ME/CFS and Long COVID Position Statement

Links between ME/CFS and Long COVID Position Statement

Emerge Australia recognises the close links between ME/CFS and Long COVID. Scientific studies indicate that the most frequent shared symptoms of people with Long COVID and people with ME/CFS are post-exertional malaise (PEM), cognitive difficulties and fatigue. Read more

Published: 21st March, 2022

Updated: 23rd September, 2022

Author: Membership Administrator

Clinical Guidelines Position Statement

Clinical Guidelines Position Statement

It is a matter of urgency for Australia to update its clinical guidelines for ME/CFS, to ensure that Australian ME/CFS patients have access to the best possible care, based on current understanding of the condition and latest evidence. Read more

Published: 21st March, 2022

Updated: 23rd March, 2022

Author: Membership Administrator

Telehealth Position Statement

Telehealth Position Statement

Emerge Australia welcomes the Federal Government’s announcement that Medicare rebates will be made permanent for online and over-the-phone telehealth services provided by GPs, specialists and allied health practitioners. Read more

Published: 19th January, 2022

Updated: 8th February, 2022

Author: Membership Administrator

What's in a name?

What's in a name?

Emerge Australia uses ME/CFS as an umbrella term. Research has not confirmed whether the illness is one condition, two conditions (ME and CFS), several different conditions or a condition with several subgroups. ME/CFS includes all diagnoses of myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS), and ME/CFS. Read more

Published: 9th November, 2021

Updated: 29th November, 2022

Author: Laura Kool

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  • Research Digest 22/12/22

    Research Digest 22/12/22

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  • Long COVID Registry

    Long COVID Registry

    In 2023, the Australian ME/CFS Biobank and Registry will expand to collect vital data and biosamples from patients who are experiencing symptoms of long-COVID.

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    ABC Article: Support for people with invisible illnesses

    Calls for greater government support for patients living with invisible illnesses like ME/CFS and Long COVID

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  • Contact Us

    Contact Us

    Emerge Australia provides an information line where you can find out about the latest news and information about ME/CFS.

  • What we do

    What we do

    Who we are and what we do

  • What is ME/CFS?

    What is ME/CFS?

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.

  • Post-Exertional Malaise (PEM)

    Post-Exertional Malaise (PEM)

    The central feature of ME/CFS, and a common symptom of Long COVID, is post-exertional malaise (PEM). PEM is when symptoms get worse after physical or mental activity.

  • Volunteer with us

    Volunteer with us

    Join our small, friendly and enthusiastic team as a volunteer

  • How is functional impairment assessed?

  • What is ME/CFS?

    What is ME/CFS?

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, digestive, immune and cardiac systems. ME is classified as a neurological disorder by the World Health Organization.

  • Coronavirus and ME - Simplified facts

    Coronavirus and ME - Simplified facts

    Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.

  • Annual reports

    Annual reports for Emerge Australia

  • Patient Advisory Group

    Patient Advisory Group

    The Patient Advisory Group provides Emerge Australia with ongoing advice about the needs of the community, as well as invaluable input into projects

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Emerge Australia
Level 7, 276 Flinders Street
Melbourne VIC 3000
1800 865 321
03 9529 1344
Media enquiries: Ron Smith [email protected]
 

Emerge Australia is registered as a charity with the Australian Charities and Not-for-profits Commission (ACNC). We are authorised by the Australian Tax Office as a deductible gift recipient (DGR). 

ABN/DGR: 22 385 438 041

Donations of $2 or more are tax-deductible. 

Emerge Australia acknowledges Aboriginal and Torres Strait Islander people as the Traditional Custodians of the land and pays respect to their Elders past and present.

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