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  • management
  1. Home
  2. Management

Management

Currently, there is no cure for ME/CFS and Long COVID and there is no evidence-based treatments that are proven to be effective. The goal of treatment is to improve a patient's quality of life and to provide relief from symptoms.

The central feature of ME/CFS and a common symptom of Long COVID is post-exertional malaise (PEM) and both patient groups would benefit from adopting a stop, rest, pace approach to minimise PEM.

In addition, working with your doctor to implement stepwise symptom management, which aims to provide symptom relief for your worst symptoms first, is recommended.

Patients may find they benefit from psychological support, to help manage emotions related to living with a debilitating chronic condition and uncertain recovery.

Psychological treatment is not a cure, but additional emotional support can improve quality of life.

View the pages below for information and support on each of the key management strategies for ME/CFS. 

Living with Severe ME/CFS

Living with Severe ME/CFS

It is estimated 25% of individuals living with ME/CFS have severe or very severe symptoms. Ricky Buchanan worked with Emerge Australia to create some tips and hacks for those living with severe ME/CFS. Read more

Published: 29th November, 2022

Updated: 1st December, 2022

Author: Laura Kool

Preparing information for your doctor

Preparing information for your doctor

Many symptoms of ME/CFS can make communicating difficult. Emerge Australia has put together some helpful ideas and tools to help you get the most out of your medical appointments. Read more

Published: 22nd November, 2021

Updated: 25th March, 2022

Author: Laura Kool

Building your healthcare team

Building your healthcare team

To manage your ME/CFS well, you will need a number of different healthcare professionals to help you deal with your ME/CFS symptoms and any other health conditions you may have. Read more

Published: 18th November, 2021

Updated: 13th December, 2021

Author: Laura Kool

Stop, Rest, Pace

Stop, Rest, Pace

People with ME/CFS and Long COVID are not able to do all of the activities they used to be able to do. We experience an increase in symptoms after simple activities that would not have been a problem before ME/CFS or Long COVID came into our lives. Read more

Published: 11th November, 2021

Updated: 25th March, 2022

Author: Membership Administrator

Stepwise Symptom Management

Stepwise Symptom Management

While pacing and rest are self-management approaches, doctors and healthcare practitioners can help with stepwise symptom management. Read more

Published: 11th November, 2021

Updated: 1st December, 2021

Author: Membership Administrator

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    Win a signed 2022 Wests Tigers Jersey thanks to our friends at Wests Tigers! To go into the draw to win this great prize, donate today to our Christmas Telehealth Appeal, to help us support those with ME/CFS and Long COVID. A donation of as little as $25 helps someone in need.

  • Research Digest 22/12/22

    Research Digest 22/12/22

    Welcome to the 91st edition of the Research Digest.  In our final edition for the year, a study evaluating aspects of the current IOM criteria is presented, as well as national and international research findings concerning Long Covid.   The final edition also puts a spotlight on the disbelief that people living with invisible disabilities like ME/CFS and Long Covid endure, and highlights Anne Wilson’s call for the government to better recognise those living with invisible disabilities.

  • Long COVID Registry

    Long COVID Registry

    In 2023, the Australian ME/CFS Biobank and Registry will expand to collect vital data and biosamples from patients who are experiencing symptoms of long-COVID.

  • ABC Article: Support for people with invisible illnesses

    ABC Article: Support for people with invisible illnesses

    Calls for greater government support for patients living with invisible illnesses like ME/CFS and Long COVID

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    Emerge Australia provides an information line where you can find out about the latest news and information about ME/CFS.

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    What is ME/CFS?

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.

  • Post-Exertional Malaise (PEM)

    Post-Exertional Malaise (PEM)

    The central feature of ME/CFS, and a common symptom of Long COVID, is post-exertional malaise (PEM). PEM is when symptoms get worse after physical or mental activity.

  • Volunteer with us

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    Join our small, friendly and enthusiastic team as a volunteer

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  • What is ME/CFS?

    What is ME/CFS?

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, digestive, immune and cardiac systems. ME is classified as a neurological disorder by the World Health Organization.

  • Coronavirus and ME - Simplified facts

    Coronavirus and ME - Simplified facts

    Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.

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Emerge Australia
Level 7, 276 Flinders Street
Melbourne VIC 3000
1800 865 321
03 9529 1344
Media enquiries: Ron Smith [email protected]
 

Emerge Australia is registered as a charity with the Australian Charities and Not-for-profits Commission (ACNC). We are authorised by the Australian Tax Office as a deductible gift recipient (DGR). 

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