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  • management
  1. Home
  2. Management

Management

Currently, there is no cure for ME/CFS and Long COVID and there is no evidence-based treatments that are proven to be effective. The goal of treatment is to improve a patient's quality of life and to provide relief from symptoms.

The central feature of ME/CFS and a common symptom of Long COVID is post-exertional malaise (PEM) and both patient groups would benefit from adopting a stop, rest, pace approach to minimise PEM.

In addition, working with your doctor to implement stepwise symptom management, which aims to provide symptom relief for your worst symptoms first, is recommended.

Patients may find they benefit from psychological support, to help manage emotions related to living with a debilitating chronic condition and uncertain recovery.

Psychological treatment is not a cure, but additional emotional support can improve quality of life.

View the pages below for information and support on each of the key management strategies for ME/CFS. 

Preparing information for your doctor

Preparing information for your doctor

Many symptoms of ME/CFS can make communicating difficult. Emerge Australia has put together some helpful ideas and tools to help you get the most out of your medical appointments. Read more

Published: 22nd November, 2021

Updated: 25th March, 2022

Author: Laura Kool

Building your healthcare team

Building your healthcare team

To manage your ME/CFS well, you will need a number of different healthcare professionals to help you deal with your ME/CFS symptoms and any other health conditions you may have. Read more

Published: 18th November, 2021

Updated: 13th December, 2021

Author: Laura Kool

Stop, Rest, Pace

Stop, Rest, Pace

People with ME/CFS and Long COVID are not able to do all of the activities they used to be able to do. We experience an increase in symptoms after simple activities that would not have been a problem before ME/CFS or Long COVID came into our lives. Read more

Published: 11th November, 2021

Updated: 25th March, 2022

Author: Membership Administrator

Stepwise Symptom Management

Stepwise Symptom Management

While pacing and rest are self-management approaches, doctors and healthcare practitioners can help with stepwise symptom management. Read more

Published: 11th November, 2021

Updated: 1st December, 2021

Author: Membership Administrator

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Showing 10 of 4

Latest

  • Building your Post-Exertional Malaise (PEM) Toolkit

    Building your Post-Exertional Malaise (PEM) Toolkit

    Join Emerge Australia's Manager of Patient Support and Information Services Laura Allen and Nurse Educator Kate Herbert in an interactive session to support you in building your post-exertional malaise (PEM) toolkit! This powerful session pools the collective wisdom of our amazing ME/CFS community to support you to come away with new tools to manage PEM.

  • Emerge Australia Ambassador Bloom - Fundraising page

    Emerge Australia Ambassador Bloom - Fundraising page

    We are so proud to announce our new ambassadorship with recording artist Amanda Canzurlo, who uses the stage name of Bloom. Bloom has teamed up with Emerge Australia to help raise vital funds and awareness for ME/CFS and our work to support the 250,000 Australians living with the disease.

  • Political Parties Missing 'The Forgotten Community' With COVID as Patient Numbers Forecast to Double

    Political Parties Missing 'The Forgotten Community' With COVID as Patient Numbers Forecast to Double

    Emerge Australia has urged Political Parties and Candidates standing in the Federal Election to increase their knowledge and understanding of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

  • National Volunteer Week 2022

    National Volunteer Week 2022

    Thank you to our amazing volunteers who contribute their support to the ME/CFS community through our services and programs.

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  • What is ME/CFS?

    What is ME/CFS?

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.

  • Patient Support and Information Services

    Patient Support and Information Services

    Emerge Australia provides an information line where you can find out about the latest news and information about ME/CFS.

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    What we do

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    Volunteer with us

    Join our small, friendly and enthusiastic team as a volunteer

  • How is functional impairment assessed?

  • Coronavirus and ME - Simplified facts

    Coronavirus and ME - Simplified facts

    Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.

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Emerge Australia
Level 7, 276 Flinders Street
Melbourne VIC 3000
1800 865 321
03 9529 1344
Media enquiries:
Ron Smith 0417 329 201 

 

Emerge Australia is registered as a charity with the Australian Charities and Not-for-profits Commission (ACNC). We are authorised by the Australian Tax Office as a deductible gift recipient (DGR). 

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