Currently, there is no cure for ME/CFS and Long COVID and there is no evidence-based treatments that are proven to be effective. The goal of treatment is to improve a patient's quality of life and to provide relief from symptoms.
The central feature of ME/CFS and a common symptom of Long COVID is post-exertional malaise (PEM) and both patient groups would benefit from adopting a stop, rest, pace approach to minimise PEM.
In addition, working with your doctor to implement stepwise symptom management, which aims to provide symptom relief for your worst symptoms first, is recommended.
Patients may find they benefit from psychological support, to help manage emotions related to living with a debilitating chronic condition and uncertain recovery.
Psychological treatment is not a cure, but additional emotional support can improve quality of life.
View the pages below for information and support on each of the key management strategies for ME/CFS.
Many symptoms of ME/CFS can make communicating difficult. Emerge Australia has put together some helpful ideas and tools to help you get the most out of your medical appointments.
To manage your ME/CFS well, you will need a number of different healthcare professionals to help you deal with your ME/CFS symptoms and any other health conditions you may have.
People with ME/CFS and Long COVID are not able to do all of the activities they used to be able to do. We experience an increase in symptoms after simple activities that would not have been a problem before ME/CFS or Long COVID came into our lives.
While pacing and rest are self-management approaches, doctors and healthcare practitioners can help with stepwise symptom management.