Many people don’t see themselves as carers, they see themselves as parents, partners, children, family or friends. Being a carer for a person living with ME/CFS is a fulfilling yet challenging experience. A diagnosis of ME/CFS can raise many questions, some of which do not have simple answers. There is often a lot of information to absorb, and advice available from many different sources, meaning at times it can be overwhelming.
This webpage and the linked factsheets have been created to support you in your caring journey. If you have questions or require additional support, please contact our InfoLine team on 1800 865 321 or via email to: [email protected]
The Carer Gateway is an Australian Government initiative that delivers new, improved and expanded services to carers across Australia. Through the Gateway you can get the practical support and advice that you need including information, counselling, peer support and respite care.
Visit www.carergateway.gov.au or call 1800 422 737
“Imagine if someone reads our story and they know or care for someone like my son...it may help them to feel less isolated knowing that there are others ‘out there' like them". Read more
As you continue to learn more about the needs and preferences of your person with ME/CFS, the importance of honouring their autonomy, dignity and independence has most likely become an important consideration for you. Read more
Building a successful caring partnership relies on clear and frequent communication to understand the needs and boundaries of both the person you care for and yourself. Read more
Since becoming a carer of a person living with ME/CFS, you may have made some small or big changes in your life. Self-care is an important part of life but can often be the first thing we stop when life gets busy or priorities change. Read more
As a carer of a person living with ME/CFS there may be times when you are called upon to provide support through advocacy. This could be with healthcare professionals, service providers, workplaces or even within your family or friendship circle. Read more
ME/CFS is a complex and disabling disease that affects many systems of the body. These include, but are not limited to, the brain, muscles, digestive, immune and cardiac systems. Read more