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  • Research Digest 22/12/22

    Research Digest 22/12/22

    Welcome to the 91st edition of the Research Digest.  In our final edition for the year, a study evaluating aspects of the current IOM criteria is presented, as well as national and international research findings concerning Long Covid.   The final edition also puts a spotlight on the disbelief that people living with invisible disabilities like ME/CFS and Long Covid endure, and highlights Anne Wilson’s call for the government to better recognise those living with invisible disabilities. Read more

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Research Digest

You can also join our community and choose to have the Research Digest delivered straight to your inbox every month on a Friday afternoon by signing up to our mailing list here.

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Research Digest 22/12/22

Research Digest 22/12/22

Welcome to the 91st edition of the Research Digest.  In our final edition for the year, a study evaluating aspects of the current IOM criteria is presented, as well as national and international research findings concerning Long Covid.   The final edition also puts a spotlight on the disbelief that people living with invisible disabilities like ME/CFS and Long Covid endure, and highlights Anne Wilson’s call for the government to better recognise those living with invisible disabilities. Read more

Published: 21st December, 2022

Author: Michelle Tavoletti

Research Digest 01/12/22

Research Digest 01/12/22

Welcome to the 90th edition of the Research Digest. This month's edition features ME/CFS studies investigating microclotting and antibody targeting of gut bacteria. Also presented, is the study of serum samples from post-covid syndrome and -/+ME/CFS patients, to further study endothelial dysfunction and the role of angiogenesis in both study groups. And finally, the recent ABC news article featuring Chris Armstrong and Anne Wilson is highlighted. Read more

Published: 1st December, 2022

Updated: 21st December, 2022

Author: Michelle Tavoletti

Research Digest 27/10/22

Research Digest 27/10/22

Welcome to the 89th edition of the Research Digest. This edition features a study looking more closely at blood cells to investigate mitochondrial abnormalities and immunological changes in ME/CFS. Furthermore, the effect of whole-body cryotherapy and activity monitoring in patients living with ME/CFS is presented. A link to Anne Wilson's (Emerge Australia’s CEO) interview, responding to the lack of funding for ME/CFS and Long COVID services in the federal budget is also highlighted. Read more

Published: 27th October, 2022

Updated: 1st December, 2022

Author: Michelle Tavoletti

Research Digest 29/09/22

Welcome to the 88th edition of the Research Digest. This edition features a study that aimed to determine the value of a simple, objective office-based test in the evaluation of OI and brain fog and large genetic association study that sought to identify chromosomal regions that may be linked to ME/CFS. Read more

Published: 28th September, 2022

Updated: 21st December, 2022

Author: Jessica Kauhausen

Research Digest 25/08/22

Welcome to the 87th edition of the Research Digest. This month's edition highlights emerging evidence of endothelial dysfunction, to further demonstrate the striking similarities of Long Covid to ME/CFS. The metabolism of tryptophan and the role of its metabolites are also presented and postulated to influence symptoms of ME/CFS, as well as suggested mechanisms that may be responsible for the neuroinflammation observed in both ME/CFS and Long Covid. Read more

Published: 25th August, 2022

Updated: 21st December, 2022

Author: Michelle Tavoletti

Research Digest 28/07/22

Welcome to the 86th edition of the Research Digest. This edition reviews research articles looking further into infectious mononucleosis and its links with ME/CFS and the impact of ME/CFS, on the quality of life for patients and their partners.  The digest also presents a recent ME/CFS brain imaging study that may prove useful diagnostically in the future and highlights the 2GB radio interview, featuring Emerge Australia’s CEO Anne Wilson, discussing the impact of changes to Telehealth. Read more

Published: 28th July, 2022

Updated: 26th October, 2022

Author: Michelle Tavoletti

Research Digest 30/06/22

Welcome to the 85th edition of Emerge Australia’s Research Digest. As a special edition, this month’s digest recapitulates Emerge Australia’s ME/CFS Awareness Week Research Panel webinar, providing insight into how our local ME/CFS community is contributing to ME/CFS research in Australia; via their contributions to the ME/CFS Biobank and You+ME Registry Australia. Read more

Published: 30th June, 2022

Updated: 28th September, 2022

Author: Michelle Tavoletti

Research Digest 26/05/22

Welcome to the Research Digest’s 84th edition. This month we recap research studies of ME/CFS endothelial cell dysfunction and how metabolomics may provide insight into ME/CFS, pre-and post-exercise. Also presented, is advice for the treatment of Long Covid patients, given the injustices experienced by those with ME/CFS and a very honest account of what lengths a person living with ME/CFS will go to, in the absence of ME/CFS treatments; accenting the dire need for vital ME/CFS research funding. Read more

Published: 26th May, 2022

Updated: 25th August, 2022

Author: Michelle Tavoletti

Research Digest 28/04/22

Welcome to the 83rd edition of the Research Digest. This month’s edition features ME/CFS studies focused on orthostatic intolerance, the effects of Naltrexone on ME/CFS NK cells, as well as a promising ME/CFS eye movement diagnostic tool. This edition also highlights Emerge Australia’s radio interviews featuring Anne Wilson, our CEO campaigning for an update to the ME/CFS guidelines and Richard Schloeffel (our Medical Director) calling out the disbelief of ME/CFS as “Medical Abuse Syndrome”. Read more

Published: 28th April, 2022

Updated: 28th July, 2022

Author: Michelle Tavoletti

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  • Wests Tigers Jersey Competition

    Win a signed 2022 Wests Tigers Jersey thanks to our friends at Wests Tigers! To go into the draw to win this great prize, donate today to our Christmas Telehealth Appeal, to help us support those with ME/CFS and Long COVID. A donation of as little as $25 helps someone in need.

  • Research Digest 22/12/22

    Research Digest 22/12/22

    Welcome to the 91st edition of the Research Digest.  In our final edition for the year, a study evaluating aspects of the current IOM criteria is presented, as well as national and international research findings concerning Long Covid.   The final edition also puts a spotlight on the disbelief that people living with invisible disabilities like ME/CFS and Long Covid endure, and highlights Anne Wilson’s call for the government to better recognise those living with invisible disabilities.

  • Long COVID Registry

    Long COVID Registry

    In 2023, the Australian ME/CFS Biobank and Registry will expand to collect vital data and biosamples from patients who are experiencing symptoms of long-COVID.

  • ABC Article: Support for people with invisible illnesses

    ABC Article: Support for people with invisible illnesses

    Calls for greater government support for patients living with invisible illnesses like ME/CFS and Long COVID

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  • What is ME/CFS?

    What is ME/CFS?

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, as well as the digestive, immune and cardiac systems, among others.

  • Post-Exertional Malaise (PEM)

    Post-Exertional Malaise (PEM)

    The central feature of ME/CFS, and a common symptom of Long COVID, is post-exertional malaise (PEM). PEM is when symptoms get worse after physical or mental activity.

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    Join our small, friendly and enthusiastic team as a volunteer

  • How is functional impairment assessed?

  • What is ME/CFS?

    What is ME/CFS?

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and disabling disease that affects many parts of the body, including the brain and muscles, digestive, immune and cardiac systems. ME is classified as a neurological disorder by the World Health Organization.

  • Coronavirus and ME - Simplified facts

    Coronavirus and ME - Simplified facts

    Many people with ME/CFS and other vulnerable communities in Australia are concerned about the impacts of the spreading coronavirus disease COVID-19. This is an easy-read resource with the latest information and advice.

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