Health and Wellbeing Survey

For too long, the experiences of people living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been overlooked and misunderstood by the medical sector and the broader Australian community, with devastating results.

Emerge Australia’s National Health and Wellbeing Survey of people living with ME/CFS seeks to improve awareness and understanding of the experiences of living with this complex and debilitating condition. Surveys were conducted in 2015 and 2019, with participants asked a broad range of questions covering demographics, caring responsibilities, ME/CFS onset and symptom experience, access to healthcare and other services, and the effect of living with ME/CFS on their individual social and economic circumstances.

Latest

Research Digest 01/12/22

Welcome to the 90th edition of the Research Digest. This month's edition features ME/CFS studies investigating microclotting and antibody targeting of gut bacteria. Also presented, is the study of serum samples from post-covid syndrome and -/+ME/CFS patients, to further study endothelial dysfunction and the role of angiogenesis in both study groups. And finally, the recent ABC news article featuring Chris Armstrong and Anne Wilson is highlighted.
Change to eligibility for oral COVID-19 treatments

The Pharmaceutical Benefits Advisory Committee recommended changes to the Pharmaceutical Benefits Scheme (PBS) eligibility criteria of oral treatments for COVID-19.
Living with Severe ME/CFS

It is estimated 25% of individuals living with ME/CFS have severe or very severe symptoms. Ricky Buchanan worked with Emerge Australia to create some tips and hacks for those living with severe ME/CFS.
Post-Infection disease: Australia’s 10th National Health Priority Area

Emerge Australia strongly advocates for the Federal Department of Health to make post-infection disease Australia’s 10th National Health Priority Area (NHPA). The number of Australians living with post-infection disease is rapidly increasing, predicted to be over half a million by the end of 2022, due to a new cohort of post-infection disease patients: those with Long COVID.

Health and Wellbeing Survey

Health and Wellbeing Survey 2019 for Medical Practitioners

Health and Wellbeing Survey 2019

Health and Wellbeing Survey 2015