Volunteers

Jenny – Parliamentary Liaison Officer

Carol – Data Management

Maria – Information Line

Jason - Communications

Jen - General support

Louise, Jolien, Sarah – Research Digest

Jop – Storyteller

Gretchen, Dave - Online Forum

Latest

Wests Tigers Jersey Competition

Win a signed 2022 Wests Tigers Jersey thanks to our friends at Wests Tigers! To go into the draw to win this great prize, donate today to our Christmas Telehealth Appeal, to help us support those with ME/CFS and Long COVID. A donation of as little as $25 helps someone in need.
Research Digest 22/12/22

Welcome to the 91st edition of the Research Digest. In our final edition for the year, a study evaluating aspects of the current IOM criteria is presented, as well as national and international research findings concerning Long Covid. The final edition also puts a spotlight on the disbelief that people living with invisible disabilities like ME/CFS and Long Covid endure, and highlights Anne Wilson’s call for the government to better recognise those living with invisible disabilities.
Long COVID Registry

In 2023, the Australian ME/CFS Biobank and Registry will expand to collect vital data and biosamples from patients who are experiencing symptoms of long-COVID.
ABC Article: Support for people with invisible illnesses

Calls for greater government support for patients living with invisible illnesses like ME/CFS and Long COVID